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G

I had my scope done.  Pouch looks great.  But my cuffitis is inflamed and my doctor suggested oral Xeljanz.  Has anyone used this for cuffitis?  I have been on canasa suppositories at bed time and Anucort suppositories in the morning.  Those just aren’t working anymore.  He also suggested going back to an end ileostomy.  I am so tired of the pain and the urge.  I have never felt pain like I do with cuffitis.  I have been battling this since January of 2018.  

Any suggestion would be greatly appreciated.  

Thanks so much.

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G grandmaof1Member

Yes I found out I have pelvic floor issues.  Did PT rectally and it didn’t help either.  So now I am seeing a different PT for the vaginal issues and I’m not sure if that is helping or not.  It is vaginally helping me though.  I have a scope yearly and it looks great. But I don’t feel well at all.  Somedays I have nothing but diarrhea and other days I can’t go at all.  Thank you for asking.  Honestly I’d love to go back to the bag.  

G

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