Hi, I just feel like giving up. I have had pouchitis, cuffitis, and now I am constipated. The cuffitis is so painful but was able to finally get some relief, after using Canasa and then my dr at U of M called in another suppository tacrolimus that had to be specially made. Finally got relief and was doing great. Then a few days ago woke and couldn’t go to the bathroom. So now I am the opposite.
I am just sick of all the problems. I didn’t expect my life to be so messed up. Does anyone have any suggestions? I don’t feel like I have any around my anus and I am not bleeding at all. I had a pouchoscopy this last summer. I do those every year, per my U of M GI. I’m about to go back to a bag. But they never can find any inflammation in my pouch. So I don’t get it at all. And it’s not like you can get into your doctor really fast since he is a specialist.
Thank you. I am drinking pure grape juice and that has helped very little to get it to come out but not much. That was recommended on her so I keep it on hand just in case.
