@Former Member posted:

You sleep through the night?! You are extremely lucky!!!! I am happy you are doing good I bet you are happy you are not a 9%er lol! How many bms  per day do you have now?

It varies. I do a lot of fasting so on fasting days I don't go that often. On regular days I can go 6 to 12 times a day. Like I said on another post though asking a jpoucher how many times a day I go can be deceiving because I can go lots of times just because I want to empty out before I do something but I don't nessesarliy have to go. I'll go before I work out or before I go somewhere or have a meeting or something.

In the last 20 years I have had a some minor-moderate pouchitis problems but none had anything to do w/ physical activity - I cannot think of any physical activity that I would not do that I did prior to J-pouch surgery / I don't ever think about not having a colon - but I guess all j-pouchers are a little different

@Jaydog posted:

It varies. I do a lot of fasting so on fasting days I don't go that often. On regular days I can go 6 to 12 times a day. Like I said on another post though asking a jpoucher how many times a day I go can be deceiving because I can go lots of times just because I want to empty out before I do something but I don't nessesarliy have to go. I'll go before I work out or before I go somewhere or have a meeting or something.

Glad your doing well! You seem really happy!

@vince66 posted:

In the last 20 years I have had a some minor-moderate pouchitis problems but none had anything to do w/ physical activity - I cannot think of any physical activity that I would not do that I did prior to J-pouch surgery / I don't ever think about not having a colon - but I guess all j-pouchers are a little different

That does not mean nothing can happen. Some people speed every time they drive but do not get into accidents, does that mean speeding is right? Of course not. I NEVER speed. I can think of billions of things that relate to my example. In my opinion, doing intense stuff is not worth it since we are more delicate than colon folks, many people here have shared their experiences with me, I chose to follow them because I do not like taking risks. If you chose to, just be careful.

Agree to disagree.  

I agree / I do the same thing

Thank you all for your help, my son had his take down surgery on Thursday and it seems like food goes right through him.  How long should it take for this to settle down?  Is this normal for the first few days?  Is there anything that helps the urge to go subside?  Thanks

@CSSunshine posted:

Thank you all for your help, my son had his take down surgery on Thursday and it seems like food goes right through him.  How long should it take for this to settle down?  Is this normal for the first few days?  Is there anything that helps the urge to go subside?  Thanks

Yes it will take a few weeks at least to get the hang of it but it will take months before he levels out. I had my takedown 2 days before Thanksgiving in 2020 and I'm doing great now. I'm in the gym every day and playing sports all the time. I still have to watch what I eat but that's not a bad thing.

The first month or 2 was really rough but it's been smooth sailing ever since.

@CSSunshine posted:

Thank you all for your help, my son had his take down surgery on Thursday and it seems like food goes right through him.  How long should it take for this to settle down?  Is this normal for the first few days?  Is there anything that helps the urge to go subside?  Thanks

CONGRATULATIONS HON!!!! Hope everything is all well!

Everything will get better! When I first got my pouchy, I was going like 40x a day, now its 14-20x a day. Everything will be fine with him

40x, well I guess his 6-12x isn’t too bad.  He is really suffering with a rash in that area, how long does it take for that to go away usually? Any recommendations?  Should he try to hold it in more and try to go less often? Thanks, we were hoping he would be doing a lot better than he actually is and we’re a bit disappointed and are hoping he can get back for training for  soccer but he can’t right now, anything even just  standing and he has urge to go.  

The barrier creams (applied after every BM) help prevent irritation and can enable an existing rash to heal. The “urge to go” is a complicated sensation - it’s important to distinguish between actual urgency (“if I don’t get to the toilet soon stool will be running down my leg”) vs. a misleading sensation of fullness/discomfort that can be safely ignored for some amount of time. Learning to tell those apart (and hopefully the accidents are actually rare or nonexistent) is one of the keys to living a truly full life with a J-pouch. Gradually, gently deferring bathroom trips is called “stretching the pouch,” and most J-pouch surgeons seem to recommend it. I don’t think the pouch actually stretches much, but the sensations start to become more familiar (and less threatening).

@CSSunshine posted:

40x, well I guess his 6-12x isn’t too bad.  He is really suffering with a rash in that area, how long does it take for that to go away usually? Any recommendations?  Should he try to hold it in more and try to go less often? Thanks, we were hoping he would be doing a lot better than he actually is and we’re a bit disappointed and are hoping he can get back for training for  soccer but he can’t right now, anything even just  standing and he has urge to go.  

I would never recommend to anyone to hold it in,that can cause problems down the road, although the majority of people here do not think so. At his stage, I used Convatec Sensi Skin barrier cream but now I use hypoallergenic lotion there. Any diaper rash cream should do.

Over time, I believe he will get use to it. My bms schedules are 14x-20x a day. And I am use to it now, i barely ever need anything there. I think he will get use to it too over time, especially since he is not going A WHOLE LOT like I was in the beginning lol. I was going 40 in the beginning and it cutt down by half over time.

@CSSunshine posted:

40x, well I guess his 6-12x isn’t too bad.  He is really suffering with a rash in that area, how long does it take for that to go away usually? Any recommendations?  Should he try to hold it in more and try to go less often? Thanks, we were hoping he would be doing a lot better than he actually is and we’re a bit disappointed and are hoping he can get back for training for  soccer but he can’t right now, anything even just  standing and he has urge to go.  

He just had it done less than a week ago. Give it a little more time. He will be fine.

Is there something to help with missing so he does not have it running down his leg?  Like pads for a period in female  but actually made for a 6ft male?

@CSSunshine posted:

Is there something to help with missing so he does not have it running down his leg?  Like pads for a period in female  but actually made for a 6ft male?

i was using diapers for a long time.

Like depends?

@CSSunshine posted:

Like depends?

Any diapers that fit. I used hospital diapers. But any should do. I mainly used them at night.