Hello. I’ve had a BCIR for eight years now. A few days ago out of nowhere, my pouch started hurting. It actually hurts to the touch. The fuller it gets the worse the pain. I have no problem intubating. I do have a history of Crohn’s and pouchitis, but I’ve never had pain like this. Has anyone experienced this? Can pouchitis actually cause a painful pouch? Thanks.
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Definitely sounds like something worth getting checked out. Pouchitis can definitely cause pain and irritation. What you are describing sounds pretty concerning.
I would see your gastro ASAP
Scar tissue is a big problem the older you get. I had it taken out after 20 years. I had so many blockades. Now 17 years after that I have 15 lbs of scar tissue and they will not take them out unless I am super blocked! Water water water!
@Tanner posted:Scar tissue is a big problem the older you get. I had it taken out after 20 years. I had so many blockades. Now 17 years after that I have 15 lbs of scar tissue and they will not take them out unless I am super blocked! Water water water!
Scar tissue can weigh that much???!!?!!!! I am happy you are doing okay though
Irritation, inflammation, a slipped or adhered pouch...If intubation has not changed then your pouch probably has not moved...if your output is normal then it may not be pouchitis (it usually changes the quality of the output to either bubbly, liquidy or stinky), it could be a pouch ulcer (you did mention Crohns) or some other kind of irritation...but all of those require either a pouchogram or other sort of exam...
Can you go onto a liquid diet for a few days and see if that helps or not? The post-op BRAT diet works well or just clear soups and apple juice, lots of fluids, rice & toast.
I always start with diet and then keep testing theories until I figure it out...I don't have a doctor that follows me over where I am...
Good luck and let us know what is happening
Sharon