Gerd, the extreme fatigue is exactly what Addison’s Disease does. The only way to clear it up is to get adequate treatment. If you can’t take the medicine for some reason it’s important to contact your doctor to discuss alternatives. Addison’s disease can kill you if it’s not treated properly.

I’m not sure how the pouchitis diagnosis was made, but it’s possible that it was incorrect. Antibiotics will reduce stool frequency for most people, whether they have pouchitis or not. My suspicion is that you may have cuffitis, and it could easily clear up once your steroid dose is adequate.

I’m not sure what your stress question is, but I don’t think stress is causing any of the problems you have described. Good luck!

The diagnosis was 100% clear because it was made by THE surgeon for UC in Germany. I now had an even stronger bleeding and I am really afraid that I maybe can't keep up my work. There is nothing that I could change apart from emotional stress. I didn't even do sports longer than 30min just to see if it has an effect.

Please see your endocrinologist to make sure your steroid dose is correct.  Addison’s is tricky and can require lots of adjustments depending on your activity and life stress.

Yes, today I've been told after examination that the bleeding was a fissure.

But my endocrinologist didn't make any adjustments within the last two months. Problem is, we don't really have a lot of them here.

So it isn't an exact procedure to deduct a certain dosis drom my blood?

Gerd, your dose will probably have to be carefully managed for a while, as Jaypea said. If you can’t get an endocrinologist to help then a good internist (Internal Medicine doctor) can probably do it. Good luck with the fissure, too. Those can be very unpleasant, but not as dangerous as Addison’s Disease.

For fissures, I went to my doctor and they “sealed up” the fissures with a sort of purple type super glue. It was painful, but it helped in the following days. I was prescribed a prescription cream, but I don’t remember the name of it but it did help.

Stress is directly associated with pouchitis and many other diseases. I’ve been told that time and time again by my surgeon and doctors. I live in Minnesota, which is prime for healthcare in the US, so I tend to believe them about the Direct effect of stress.

Hi Gerd.  I have a J pouch (2017) for UC and I also have Addison's.  I also do sports (or at least keep fighting the good fight to continue kayak and canoe rack g and cycling.  I have had episodes of pouchitis for which Flagyl works moderately well.  I have fissures frequently with spasms, burning and pain.

Addison's is hard to deal with. I get fatigue, muscle spasms, weakness, strange tight dluttering in abdomen, thin fragile skin with easy bruising.  At times, the abdominal muscle contractions are very strong and  uncomfortable and I cannot exercise when this happens. My sleep is poor most of the time.

Just thought I would  share and support you as my journey sounds similar.  Take care.  BTW my Hydrocortisone dose is almost physiologic at 22.5 mg daily divided into doses: 12.5, 5 and 5.