Happy pouchiversary! I'm at 3 months, can't wait til I'm further down the road.
I think you have a blockage
They checked for blockage and there wasn't any
I did well on Cipro for 2 weeks and then 2 weeks after that I have pouchitis again. I don't know what to do.
Why don't they give suppositories for jpouch issues because it starts in the anal canal with what's left of the mucosa down there? I think it is logical to treat it at the source of the inflammation no? Either way I'm back to suffering again. It will never stop. I will never find anything that works long term.
I hate my life and I hate my jpouch
@Andreita posted:They checked for blockage and there wasn't any
I did well on Cipro for 2 weeks and then 2 weeks after that I have pouchitis again. I don't know what to do.
Why don't they give suppositories for jpouch issues because it starts in the anal canal with what's left of the mucosa down there? I think it is logical to treat it at the source of the inflammation no? Either way I'm back to suffering again. It will never stop. I will never find anything that works long term.
I hate my life and I hate my jpouch
I am so so sorry for your suffering. I agree with you- they should give suppositories. Maybe try switching gastros? I would hate to tell you to go to a bag because that has risks too. Maybe different gastros might help. Have you tried VISIBIOME or VSL3? I hear that works wonders.
@Former Member posted:I am so so sorry for your suffering. I agree with you- they should give suppositories. Maybe try switching gastros? I would hate to tell you to go to a bag because that has risks too. Maybe different gastros might help. Have you tried VISIBIOME or VSL3? I hear that works wonders.
Maybe try doing a full clean out. 2 bottles magnesium citrate. That might help
I am so sorry to hear this. My pouch was very challenging for almost two years. (Even, then did not regret getting it) Had one blockage and surgery 6 mos. post...and still had issues. Never pouchitis, not much that anyone could think of. My Dr. put me on Rifaximin, four weeks...and life started changing. That is the last drug I took. I also changed my diet. I honestly think it took my pouch 2.5 years to mature. My pouch is 3 years old...and I have never ever felt better in my life...I mean I feel fantastic. I feel normal.
I don't think my pouch can mature with constant inflammation
I haven't asked my gi about the suppositories yet there is no need to switch. I just think it would be logical but I'm no expert
@Andreita posted:I don't think my pouch can mature with constant inflammation
I haven't asked my gi about the suppositories yet there is no need to switch. I just think it would be logical but I'm no expert
Are you doing better now???
I'm on probiotics four times a day and dilate once a day. Once I lose control of my bowels I'll start cipro. But it hasn't happened yet. I'm not getting worse. So I guess I take it.