Hi Aimee,

short story: have had my j-pouch since 1996. I’m 55 now. 

In May of 2106 though, I was diagnosed with ovarian cancer and had a complete hysterectomy in August 2016. I’ve also had a lot of chemotherapy. I had my hysterectomy by robotic surgery. The good news is that everything went really well and my j-pouch has never been happier. 

My colo-rectal surgeon was there in case she was needed for any complications, but there weren’t any. 

My j-pouch had a really hard time with the chemo though. Sadly I’m having a reoccurrence now after 3 amazing cancer free years. Boo

Ask me anything. I’m here for you.

CJ

Wow, you’ve really been through it. What a champ you are. I am sorry to hear that cancer has made a return. Having seen a friend, a nephew, and my father in law, face it in the course of the last few years, I’m keenly aware of just how wicked it can be. 

I will be thinking of you and sending prayers your way. One of my main concerns, aside from the big obvious one, in facing cancer is the the notion of what a nightmare it would be for my pouch.

Reading that the hysterectomy itself went well for you is encouraging as I’ve read instances in which it has not for others. Also, I had my j-pouch done at the Cleveland Clinic and live in the the metro DC so I am far removed from the surgeon and facility i have a great deal of trust in. Which isn’t to say the surgeon I’ve been referred to isn’t good, he is, it’s just that I fear he has little experience with us j-pouchers, and his observable nervousness to preform a hysterectomy on me has given me pause. It would be diffidult but I’m wondering if I should return to the Cleveland Clinic to address this. I’d certainly feel more comfortable with my j-pouch surgeon at least in the loop.

It is likely I will have more questions for you as things go along so I reallly appreciate you extending an offer advice for continued “counsel”. I am guessing you will soon begin, or already are undergoing chemo again, so if you ever want to vent, feel free. I’m no expert on the matter but I am seriously a good listener and would be happy if that was something small I could do for you. Plus, I’m good for a laugh or two.

Best wishes, CJB!

Aimee

I had my hysterectomy before my j-pouch surgeries. I have read in here about involvement with j-pouches. In one particular they had to remove her uterus as it was attached or wrapped around her j-pouch. They knew this before going in. If I were you I woukd at least call Cleveland. The practice of having a colorectal surgeon in during the hysterectomy is common. I know it is a pain having surgery away from home as I live around 4 hours from Mayo but feel better getting my surgeries there.

Best wishes for your surgery and recovery!