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Ryannsmom posted:

Yes that would be helpful. When they called to let me know Shen was leaving, they said his patients were being referred to Brzezinski, Philpott, and Cozzy(not sure of spelling??). But I know nothing about any of them. And have heard other patients were given a different list to choose from??

my list was:

Brzezinski, Click, Qazi, Sullivan, and Philpott

Pouchomarx
Pouchomarx posted:

I am in a huge Jpouch Facebook group and they have all said that's BS, he just cant recruit you to come see him there if you are a CCF patient.. But if you want to schedule an appointment with him in NYC , you sure can do that.

That's correct. Dr Shen is seeing patients in NYC. I found this link (below) on the internet and then called his office. They are scheduling anyone who wants to see him starting next week but his schedules are already filled his secretary mentioned.
 
Phone 212-305-5664
Fax: 212-305-0267
S
TheoG33 posted:

Anyone have an update to this? Has anyone successfully scheduled with Shen in NY yet? I am a former patient of his at CLE Clinic and hoping to schedule with him soon (luckily I have copies of all of my medical records and tests). Looking for tips and tricks before I call, are they really denying folks on the NYC/Presbyterian end??

 

yes, I called to schedule.

please see his link and contact number/fax I found.

 
Phone 212-305-5664
Fax: 212-305-0267
S

I have seen Dr. Brzezinski, about 10 years ago for 1 appt and he worked with Dr. SHEN.  I am looking for someone who specializes in fistulas from the pouch,  which is how I found out shen left . He has hopefully left a mark and his peers in the clinic can carry on his teachings..

 

I am in Detroit and work at a hospital and my hospital now requires I stay in their system..  very frustrating when there are better options out there

ChelleH
ChelleH posted:

I have seen Dr. Brzezinski, about 10 years ago for 1 appt and he worked with Dr. SHEN.  I am looking for someone who specializes in fistulas from the pouch,  which is how I found out shen left . He has hopefully left a mark and his peers in the clinic can carry on his teachings..

 

I am in Detroit and work at a hospital and my hospital now requires I stay in their system..  very frustrating when there are better options out there

I don't think anyone there is nearly as good as Shen or can do the things he can do. I just scheduled a new patient appt with Philpott to see what shes about and what her capabilities are. I am on my 2nd pouch and Shen has been with me for 10 years and helped me greatly with my odd issues, I am afraid for my future without him being in my backyard any longer

Pouchomarx
ChelleH posted:

I don't disagree pouchomarx... 2nd pouch? I didn't know that was an option? I was just trying to be a little positive

Yes I had my original surgery in 2008 and had a lot of issues and almost died from infection. My original surgeon at Cleveland Clinic and Dr Shen tried many procedures and even experimental surgeries to try and correct my issues but over 5 year or so they all failed. I had a total pouch redo with Dr Remzi at Cleveland Clinic just before he left for NYC as well. He is considered the BEST when it comes to pouch issues and redo surgeries. Things are nowhere near perfect for me but much better.

Pouchomarx

Pouchomarx,  that's amazing! You've been through a lot.  The Cleveland clinic, Dr. Lavery,  also saved my life in 2002. I had toximegacolon and perforation, sepsis,  the works.  Now I have continued pouchitis,  which is how I found Dr. Shen.. but haven't seen him for 6 years due to insurance.  I was on remicade,  that worked for 10 years,  just tried entyvio for 6 months and now have fistulas everywhere .. and chrons of the pouch.  I don't want to lose my pouch.... we are trying humira,  since remicade worked and it's also a TNF blocker..  I am working on appealing my insurance because I know CCF will have more options.. continued luck to you

ChelleH
MM123 posted:

Does anyone have a current phone number for Bo Shen? We have been trying to reach him at the number listed on online in his Columbia bio (212-305-5664) to no avail. The voicemail greeting references a different doctor, not Shen.  Thanks 

Maybe he realizes he made a mistake and hes coming back to CCF? lol  I could only wish.

Pouchomarx
CTBarrister posted:

It’s strange because this is the only number that comes up on a Google Search and the website seems to be blocking access to calling the number as well. Dr. Shen is, effectively, now an unlisted number.

After a couple of days worth of sleuthing, and many, many dead end phone calls, we did finally get an accurate number for Dr. Shen's office. 212-305-9664 (the posted number was off by a digit - possibly a typo). After we ultimately made contact once, seeking an appointment, the office has been disappointingly unresponsive, rarely responding to voicemails or emails. We are quite frustrated and are about to give up on Dr. Shen, despite the wonderful things we have read about him here.

M
Strongerlynn posted:

I would be calling every day. That's how I roll. That is not how his office is normally run. But if you need someone quick I understand. 

We did ultimately get in touch with Dr. Shen's office and have scheduled an appointment. It seems the office is not quite fully functional yet - the woman who I spoke to, Linda, was frenzied (but ultimately very friendly and accomodating) and said they are adjusting to new processes and systems, etc. following the move. Just wanted to put this out there, for anyone else who is having issues reaching the office....

M

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