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I am here to share my experience after my three stage j pouch surgery. To be honest, I feel I should choose permanent ostomy instead of j pouch.

I am still having 20+ bowel movements per day. And I had close to 100 times during first week after surgery. Things are improving, since I am able to hold my output for a while, but it is very uncomfortable. So I normally just go to bathroom right away. Shall I train myself for holding output longer?

I am going to have video appointment with my surgeon next week. But so far, my surgeon’s team told me everything is normal. And they suggested me to take fiber supplements. But after 3weeks I do not see much benefits so far.

Anyone with similar symptoms like me? Advice please. I am 30 year old male, UC diagnosed in September, 2021.

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Most surgeons recommend that you gradually train yourself to hold stool longer. You should be gentle on yourself, looking for progress over weeks and even months. Kegels can help, but patience is important, too. I’ve been using psyllium fiber and Lomotil (like Imodium) every day since my surgery 22 years ago. I find the Lomotil most useful at bedtime.

If you don’t have a bidet I’d suggest that you find one within your budget.

I also take Imodium; 3x/day. Breakfast, dinner and  bedtime. Without it, I would have no QOL.

i had my ttakedown almost three years ago. My situation was very difficult in the beginning, and I too questioned the decision to embark on this surgical path. Many people here, as was pointed out to me at the time, have a lot of difficulties in those early days. Over time things tend to get better as you heal, recuperate and figure things out,

I would also cast my vote for the bidet. I happen to have a built in one and I use it at least once a day.   It’s my best friend!

It takes time for the pouch to acclimate and start acting more like a large intestine.  Your frequency will adjust over time. For now, taking care with what you eat can help.  You may have been discharged with advice like sticking to certain foods that slow output - peanut butter, banana, rice. Oatmeal is good (but oats have lots of soluble fiber, so don't eat at the same time you use psyllium husk.) Getting ample protein (chicken, egg whites, greek yogurt) is important.  As is avoiding sugar/ wheat  and insoluble fiber (most fruits and vegetables.) Also not drinking with meals. And though we need lots of water, it's best to sip through the day between meals/ not chug down large volumes of liquids at once.  

And yes to the bidet!

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