I can’t speak for your employer’s tolerance, but what’s wrong with your pouch function? Most J-pouchers don’t need to take sick leave (for pouch issues) after their final surgery.

Wow, than I guess I am the uunlucky one.  In the last few years it's been abstraction after obstruction and this last occurrence is a partial obstruction due to pouchitis. They put me on 2000 mg of antibiotics per day for 2 weeks, and it was two different kind of antibiotics that I was taking. It made me nauseated weak and I had a so many stomach cramps I couldn't go to work. I'm on sick leave cuz now I'm trying to get stronger again.

27 years as a full time practicing attorney and still going strong. I got my J Pouch in 1992, same year I started practicing law. Many trials in those 27 years and never had a prolonged absence from work.

I have always treated pouchitis/Crohns very aggressively and listened to what my doctors have told me to do.

Back in the 1990s I would be very nervous going to Court for prolonged hearings. However I never had any issues and figured most of it was anxiety that would be overcome by adrenaline kicking in. Now that I am a veteran in the business I don’t worry about stuff I used to worry about. My employers all made accommodations and knew of my conditions. The chief accommodations were rides to scope appointments and adjusting my schedule accordingly.

I had around 4 obstructions in 1992 right after final surgery and none since. It sometimes takes a while for things to settle down.

Well, maybe I have had pouchitis forever and never knew it. I don't have a gastroenterologist that follows me. So whenever I'm in extreme pain and vomiting I end up an ER and I am treated there. Usually with doctors who don't know much about my case history or don't know much about the jpouch.

Find a competent Pouch specialist and get proper treatment. If you don’t stay on top of the Pouchitis it will get worse and not better. It’s very treatable in most cases.

Thanks CT.

I am trying.  The last referral said he wouldn't see me because my situation is too complicated

I was given Salofalk, ciprofloxacin plus flagyl to treat this last episode.  Have you ever taken salofalk suppositories to treat pouchitis?

I think they are called something else here, I was given rowasa suppositories and enemas and I never felt they were of much help. What has helped was antibiotics, which I have taken chronically, and Remicade. I rotated cipro and flagyl, augmentin, tinidazole and xifaxin for around 20 years with good success. They kept the inflammation in a simmering state. I started Remicade in 2015 and it cleared up all inflammation in the Pouch. My last scope on May 22 (last week) showed some very mild cuffitis and mild inflammation and narrowing at the J Pouch inlet but nowhere else really. The J Pouch Inlet area has always been inflamed. You can live well with such findings. You just need the right doctor and treatment. Go to Toronto I am sure there are some top J Pouch people there. 

Thanks CT.  Much appreciated.

I am the type who prefers natural treatments and if possible avoid antibiotic use.  I feel like the jpouch doctors will only prescribe antibiotics and nothing natural. I'm going to stay on the oil of oregano treatment for now and see a doctor as soon as I get my referral.

My husband is still going strong with his j-pouch and a full time job. Granted he does work at home, though he does have to travel.

I have a fulltime job as a financial analyst at Future First. I work 8-10 hrs a day give or take. I have to use the bathroom once 1-2 hrs before my day ends but thats not an issue. I haven't taken any leave as of yet , though I'll soon shift to a different job or opt for higher studies for entirely different reasons.

I take a light breakfast and big lunch . Breakfast in mostly tea with bread and 1-2 bananas. I also workout almost everyday . Thats helps me big time in improving my overall health.

What is your diet like. I kept mine very bland for years just because of fear of causing problems. I eat more of a normal diet now but still don’t eat fruit, only well cooked vegetables, no soda, no alcohol, no chocolate, nothing spicey. Sounds terrible, but there’s plenty of other things or I just eat a very small portion of things that are no no’s. This may not be a problem for you at all. Just a thought.

Hi, I'm new to the community. There is some good advice on here. It's great to be in touch with common ppl. I wonder what some ppls job titles was with this issues and how they manage. What I will say I've been on my job for 26 years. Had UC since I was 19, now I'm 50. I work customer service for 14 years and the remaining behind the scenes with my own desk as well as office, that was comfortable. Working at a customer service desk waiting on ppl with my issue and now having a j pouch and the ladies room is ten miles away with a full  bathroom some times  is scary. So what I have to do hope and pray.  I've had two accidents 😒. Not a happy moment. I haven't had my take down yet. I hope things will heal itself.Iitself.Ivitself.Iitself.Ive  changing my great eating habits to carbo's 😢. As I read everyone story it helps. Thank you.

chal posted:

What is your diet like. I kept mine very bland for years just because of fear of causing problems. I eat more of a normal diet now but still don’t eat fruit, only well cooked vegetables, no soda, no alcohol, no chocolate, nothing spicey. Sounds terrible, but there’s plenty of other things or I just eat a very small portion of things that are no no’s. This may not be a problem for you at all. Just a thought.

I eat everything now except chocolates , they still somehow manage to give me instant diaroehha . Also since I workout after office so my sugar intake is also very low. I practise 16/8 intermittent fasting now , wherein my first actual meal is at 2 pm lunch time. Big box of rice and eggs or chicken. Next meal at 5 and then some preworkout snack at 7 and post workout one protein shake and dinner at 9:30 ish.

I mostly eat chicken , hard boiled eggs, rice , brown bread, peanut butter , some fully cooked vegetables. Outside I'll eat pasta, beer/whiskey sometimes.

I think limiting sugar is the best way to a healthy gut for me.