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Hey everyone,

 

im 3 months post takedown right now and i'm doing quite well despite my previous complications. Diagnosed with UC at 18 and suffered 2 blood clots in my vena cava(strange isn't it?)

I am on 6 2.5mg lomotil a day which I am very satisfied with as I use the bathroom  usually 4-8 times a day depending on what i eat and when i eat it. Ive been able to try fruits, some vegetables and other treats I haven't had in months!

I do however have some questions about my ostomy site. It's healed and closed but it has been pink for weeks now. The skin has looked the same for a brief period and it's still very raw. I'm not experiencing any pain or discomfort or anything, just weirded out by how the skin just stopped growing..

Is this normal? Has anyone else had this occurrence and if so how long did it take to resolve? 

 

Thanks

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You said you are “weirded out by how the skin stopped growing.” If it’s healing by granulation then it’s not skin, it’s scar tissue, and you will have a scar there for life. It’s never going to feel or look like skin, because it isn’t skin, it’s scar tissue. Also, there are no nerves in scar tissue so the sensation will always be different. It’s not skin, period, so mentally you just need to accept that and understand that your body has changed.

I would suggest applying vitamin E oil to soften the scar tissue. It will take a long time to fade to a different color but the depressed area of discoloration will remain for life. As long as it’s not infected it’s just a cosmetic issue and in the big picture not as significant as Pouch functionality issues will be going forward.

CTBarrister
Last edited by CTBarrister
Jonathan posted:

Wow. Feel free to not answer but is yours still reddish/pink today? And doesn't it ever shrink? How long do you think it was before you regained sensation there?

Mine is reddish pink and visible clearly to naked eye. I feel a bit awkward going into pool naked but it hardly bothers me. I apply oil daily to it to make it soft overtime. There is no sensation just like a soft rock on the belly.

R

My scars from the 4 surgeries I need to get to final takedown and JPouch plus from my kidney donation really don't bother me at all.  Depending on my mood I offer up either the truth or a ridiculous tall-tale when asked about them.   I think my surgeon did a great job with the ostomy site, the scar is much smaller than I expected.  A 'purse string' suture reduces but does not totally close the wound.  

 

 

G
girlunky posted:

My scars from the 4 surgeries I need to get to final takedown and JPouch plus from my kidney donation really don't bother me at all.  Depending on my mood I offer up either the truth or a ridiculous tall-tale when asked about them.   I think my surgeon did a great job with the ostomy site, the scar is much smaller than I expected.  A 'purse string' suture reduces but does not totally close the wound.  

 

 

Now I'm curious! What are the tell-tales you tell? I want to hear them! Haha

A

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