I’ve had my j pouch for about 7yrs now and am experiencing the same.i believe the healing process is very long and eventually reaches  a plateau.The muscles do get confused so to avoid all conflict take care of all buisness sitting all good just another test of faith in our bumpy road called life.good luck kiddo hope this helped and please don’t let it ruin your life it gives u lemons make lemonade 

G'day Jake,

Have you seen a specialist continence nurse? They have some pretty sophisticated diagnosis tools and specialist physio exercises these days.

I saw one when I got into trouble with my j-pouch – ultimately she was unable to find a solution to my problem (because it's untreatable) but I was impressed with the knowledge and help available. Could be worth a try.

Cheers, Sarah

Well ONLY u know ur body.iIF YOUR NOT eating a ton of VEGETABLES,GREENS, OATS ,FRUITS.then MAYBE  portion control,  fish, chicken or turkey. THEN START THERE FIRST... along side a top notch gastro AND surgeon... if u did ur homework and this is the team u want on ur side then IMMEDIATELY SEE THEM... hope all goes well..

Also IF ur mind is not on savage discipline mode it NEEDS TOBE because ur in the  TOUGHEST FIGHT  of ur life... so with that being said u need to ALWAYS be on top of WHAT WORX ........THE MOST.. take it and MAKE IT ROUTINE... HABITUAL.... your mind is right Then..... U ...JUSTCANTLOSE💪🏻👊💣😠😏

Hi Jake. I am actually 6 years post reversal. But prior to that, I had had numerous back surgeries and was on high levels of narcotic pain medications all the time. Eventually, a combination of nerve damage and weakness brought on by the pain medicines caused me to be unable to urinate. I had to learn how to catheterize myself when I needed to pee. I was fortunate after a month or so and my bladder started working again. I don't know if that's an option for you or not, but it may be something to look into, at least until things get straightened out for you. I'm not saying you're using pain medicines, I don't know. I'm just saying that self-catheterization may be an option. You just do it when you need to pee and then remove the catheter and go on your way. Best of luck!