Hello,
i just recently had the second step of my three step journey completed, but due to complications and a lack of more internet documentation on three steps I am feeling very worried and uneasy.
I ended up having to be rehospitalized due to an ileus and had emergency surgery on the stoma. This was about a month ago. I was losing my mind being hospitalized so long.
The surgeon says everything is working well but what I have to deal with at home concerns me. I was having these awful pressure pains that would make me want to scream. They happened no matter what I ate and made my belly look like an alien was going to burst out of it, only blimping on one side. Along with that, my stoma just seems to be emptying very slowly, like 12 hours after I ate something.
Another concern is urgency in the unconnected j pouch. I keep getting up to void a pitiable amount of mucous and a little blood 15-20 times a day. It is driving me mad; it constantly feels like I need to go and my anus aches.
Miserable and scared.