When I lose my appetite that is my first sign of dehydration. Just happened recently —have had pouchitis for a while. I just found out I can get iv fluids from visiting nurse service. Don’t need blood test first, dr wrote order for every 2 weeks and I can cancel if I feel ok. 

No more ER visits!

I almost never have an appetite, I've been like this pre jpouch. Antibiotics and uc just made me stop eating. Now I'm never really comfortable unless I'm empty. I use cannabis to help with both appetite and the discomfort from gas pain, as well as making sleeping easier.

I've never been diagnosed with Irisitis, but I definitely have light sensitivity. I wear sunglasses when most people don't.

Irisitis is an autoimmune disorder that is quite common with persons who suffer from IBD.

I had the problem after my surgeries but eventually found my love of food again after everything quit hurting all the time. I lost 80 lbs and have gained half of that back. (I had the weight to loose.) I dreaded eating as it started up the digestive process which hurt as the food went thru me.

I had to go on hydrocodone to help with the pain.  I never felt high and didn't get addicted. In fact since my j-pouch was removed and the surgeon worked on my adhesions I take a smaller dose plus take it twice vs 4 times a day now. I know we are all leary of narcotics but they do have a place for people in pain.