Mat, it really sounds like you need to see a GI. Get checked for pouchitis or even c diff. I know you said you don't have insurance, but neither of these conditions will go away without antibiotics. You could try all the bowel thickeners, bananas, apple sauce, etc . maybe a probiotic, but it really sounds as though you may have something a bit more serious going on. Good luck, I hope you can get a dx soon. 

Aimee

I think Aimee has it right, Mat. You most likely just have pouchitis. It’s only a big deal because it hasn’t been treated. In most cases 10-14 days of Cipro or Flagyl (both inexpensive) will clear it up, and things can improve very quickly once treatment starts. The hardest part might be successfully choosing a doctor that has heard of pouchitis. Are you in Bangkok or a less cosmopolitan location?

Good luck!

Hi Scott and Aimee,

Many thanks for getting back to me, really appreciated...Yes I am near Bangkok and I suppose its as you say, finding a Doctor who understands 'our' issues

I know I have to do something soon as its been far too ong now and its just not clearing up! For me, I often think I should never have had the surgury as I have always had issues one way or another, in fact, it runs my life quite often!

Anyway, I will try and get some Cipro or Flagyl ASP and see what happens...

Thanks again for responding,

Mat

You have to get it checked for pouchitis. And I also think you might want to check on your intake of fresh fruits and salads. Thai food is quite famous for it. Salads dont go well for me. I have to run in like every half hour after one bowl of veggies. So might want to consider a change in your diet.

Many thanks Raj, I appreciate your response 

Could it be c-diff? 

Technically C diff *is* a type of pouchitis, though we usually talk about it separately. This could certainly be C diff, and it’s probably worth testing for, but that’s less likely than garden-variety pouchitis.

Lots of us have no trouble with fresh fruits and vegetables, though a dietary issue does need to be considered, too.