Hi, Gin! I’m sorry you’re having more trouble. If your pouch is disconnected how can you get *any* feces (even occasionally) out of it? I’d assumed that your permanent ostomy was an end ostomy...

Are you having any other symptoms? Discomfort?

Yeah, I had that question too. But apparently it is a loop ileo, for some very technical reason I don't understand. (I think because I don't have much left to work with, but I could be wrong about that.) So some leakage can happen with very loose output; however, this is waaaaaay more than normal and, as I said, doesn't generally contain faeces.

Other symptoms: general discomfort in the abdominal region from time-to-time, but nothing more than normal. I'm tired -- make that exhausted -- all the time, but I also have a very stressful living & work situation (special needs child, in house parent with dementia, tough job) so I have been putting the tiredness down to that. Could be physical, however. Really nothing else!

Oh, I do have random body parts which go tingly or 'fall asleep' sometimes, and that has been getting more frequent. Don't know if that is connected somehow -- I've always been told it is nerve damage from the Flagyl I took years ago.

Doc just phoned and thinks I should skip straight to the surgeon, so now I've got to try and wrestle that appointment.

Always a fun time.

Gin

The good news is that someone can take a look with a scope to see what’s going on, if they can’t figure it out more easily. Some generalized GI inflammation might behave this way. Are you on any medications to help your gut behave?

Update: the stoma nurse wants me to try irrigation while I wait to see the Crohn's people who work with my surgeon. I have to call to follow up on that appointment today. Bit nervous about the irrigation, especially after reading all the warnings in the instructions!

As to meds, only loperamide; I take 8 20 mg capsules a day. So I presume the specialist might want to review that as well.

Hopefully will be seen soon!

Gin