J9pouch, you could try lomotal. It's a prescription drug, so you will have to have your surgeon to write you one. Maybe eat dinner earlier and maybe no snacks after 6 pm or so. Hope this helps. Good luck. 

Aimee

Sorry it's lomotil. 

I take Lomotil instead of Imodium bc I thought I was having a reaction to the Imodium. I take anywhere from 3-4 pills a day but the script is written so that I can take up to 6 pills a day. Maybe chat with your doc and see if it that might help. I also take Beano before lunch and before dinner for the gas build up. 

Hey J9Pouch, you could also try to use Mucofalk (sorry, I don't have an American trade name). You have to drink it and it will (probably) thicken up your stool a bit. I'm using it and I'm honestly not 100% sure whether it really does anything to lower the frequency or urgency of bowel movements, but the stool definitely is more "formed" and not that watery. It gives me a good feeling (like "yeah, I have taken something, this should help") and I think that it's indeed helping (but I can't tell you 100% as I don't use it that often and after that don't watch the clock etc.). But you can definitely try it

I used to have the same problem with waking up in the middle of the night with  my pouch wanting to empty and empty and empty.  My GI gave me a prescription for Elavil (Amitripylin) 25 mg.  It is a medicine given for mental issues, but it side effect is thickening. (Which is why he gave it too me.) I take 1 of these and two lomotils every night.  I might still wake up to empty, but I can then go back to sleep.  I've even been able to sleep through the night. It has really helped me to get much more sleep than I had ever gotten before.  Might be worth trying.

Yes, I've had the same problems.  The first decade after my takedown I was taking 20 Imodium a day and tried lomotil, and anything with the side effect of constipation.  Im taking tincture of opium now and find it helps because it slows peristalsis.  I've been taking it for about 10 years - same dose, and it works well unless I have pouchitis.

OMG, Nurse Butthole, that handle!! I LOVE IT!!