Just found out I have Croyns disease | The J-Pouch Group

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Bill A

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5years ago I had my colon removed for UC. Over a year I had 3 surgeries to give me a Jpouch. Problem is I have never been able to have less than 20 BMs a day. Tried everything with little results. Now it appears as result of pouchscopy and biopsy Croyns is the reason. I need help. Can not afford cost of entivio as recommended. How do people pay for these drugs or what insurers will cover?

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Scott FMember

There are some programs that might be helpful enough to enable you to afford Entyvio, Have a look at https://www.entyvio.com/financial-support

Hopefully you have health insurance, but there is support available in either case.

11/30/178:54 PM

Bill AMember

Thank you for your reply. What insurance companies cover the drug? Have you found any who will?

SaffMember

Hi Bill,

I am in the same boat, but have had pouch disconnected the last 7 years. Even disconnected its trouble, I am working up the courage for removal.

12/17/175:06 AM

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