Skip to main content

Replies sorted oldest to newest

I have a BCIR, but have never actually measured my output.  My guess is that my pouch is quite large, perhaps similar to yours, and I have gone up to 12 hours between emptying it.  The range of 500-900cc is normal for a k pouch.  If the “pain” occurs only when you pouch is reaching its capacity, this is normal and provides a signal that it is time to empty.  If it occurs at other times, it may not be pouch-related and could require medical attention.

BillV

How do you guys manage to go for long periods without intubating? Me, I need to intubate first thing in the morning, after breakfast, and again just before leaving for work before I feel completely empty. Then I intubate at least 1-2 at work, again when I get home, and before bed. I've tried experimenting around with Milk Mag because mornings are just brutal and time consuming for me but didn't notice any difference except the output consistency. I was diagnosed with colonic inertia through sitz marker study and was told it tends to affect the small intestine later on which makes my output thick but the frequency on intubation doesn't add up. Maybe my pouch is too small so the hypersensitivity when there's contents in there...

MJ0917
Last edited by MJ0917

Add Reply

Copyright © 2019 The J-Pouch Group. All rights reserved.
×
×
×
×
Link copied to your clipboard.
×