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After 4-6 weeks of some pretty moderate to severe stomach pain, abdominal cramping, bloating and general uncomfortability, I finally called my surgeon.  He scoped the opening of the pouch (but not the entire?) and ordered CT scans of the GI.  Both "looked good and normal."  Surgeon recommended seeing a GI, specifically one he works closely with.  Unfortunately, its a hike for me and he doesn't take insurance.  On the other hand, I work at a hospital and am friendly with some of the people working in the endoscopy suite (pretty ironic), one of which offered to get me a quick appointment with a member of the hospital's IBD team who is familiar with UC and Pouch, but probably not like the NYC physicians.

Am I out of line in seeing the local doctor, who is associated with my hospital and takes my insurance?  Or should I stick my surgeons wishes?  I know I can eventually do both, I just don't want to waste time (and money) either. 

-Ken

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As Scott started not everyone in NYC is competent. My son sees a surgeon in NY who is awesome.  But he also takes our insurance. Unless your surgeon is paying your bills, I'd see someone who takes my insurance.  No since you work at the hospital, you will most likely get good care.  Seeing someone who doesn't take insurance is a very risky thing.  My son's bills over the last 3 years are over one million dollars, closer to two after this year.  And it was all covered by our insurance.  If you decide to see someone in NYC, see someone in a university setting like NYU or Weill Cornell.  There is an awesome GI at NYU, he used to be ours till he moved.  The name just escaped me, I'm sorry.  I know he used to take insurance, because he took ours.  Oh Dr Bosworth, that's the man.  He is at NYU.  Good luck.

 

Jeffsmom

Thanks both of you....I guess since I've only ever seen my NYC surgeon (Bauer), I've become pretty protective over my pouch and new setup and have concerns (legitimate or not) about 'outsiders' getting involved.  

But I take both of your points - I will see a locally referred GI this afternoon and see what he has to say.  Of course, my symptoms are mild this morning (isn't that always the case).  Unless he has extensive J-pouch exp, I think if he wishes to scope the bottom, I might revisit the NYC GI (Bauer wanted Kornbluth, who doesn't take insurance...so I thought maybe Legnani).  

Unfortunately Jeff's mom is correct - $$ plays a role.  I have 0 regrets, but I think I'm still paying off my original J-pouch surgery with Bauer.  Yesterday he asked me to call Arthur Kornbluth (no insurance), who works in the same office as Legnani (yes insurance).  Sometimes, you have to let insurance dictate your choices a bit.

-Ken

KennyJG44

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