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For the 4 years that I put up with my severe ulcerative colitis I never had leakage; since the first of my three surgeries for my J pouch, I've had constant leakage, not a lot but enough to constantly irritate things  and cause me to either stuff a pad up my butt or wear a pad in my underwear. So what exactly has changed anatomically speaking?  My surgeon was quite pleased with the strength of my sphincter muscles prior to surgery; I worked hard to keep them strong for 59 years . Just because I didn't use them for five months while I had my bag all that went down the drain? What gives?

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Usually I only have leakage when the pouch needs to be emptied and I can't get to a toilet quickly enough.  I used to have night time leakage but that has stopped.  I also take 2 Immodium in the evening before bed.  So, I tend to wear light pads during the day if I am going to be away from home for a while.  It is an annoyance, that's for sure.

C

Leakage while you had a loop ileostomy isn't really related to leakage from a functioning J-pouch. Leakage is the most common complaint about J-pouches. You might have pouchitis, though, and 10-14 days of an antibiotic might fix you right up. I've always used psyllium powder twice daily, and that seems to help, too.

Scott F

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