Skip to main content

I've had a few obstructions in the past year and they say they see where my bowel obviously gets obstructed at the old staple line(ileostomy area of bowel) from my 1999 j-pouch original surgery.

I went to ER last week with horrendous obstruction and pain. The last few obstructions where I go to the hospital, they clear without an NG tube eventually after pain meds and a day or two in hospital.

2 years ago, I had laproscopic(spelling?) surgery for adhesion removal and I guess the surgeon didn't investigate the staple line area that is now causing the obstructions. Or my body may have changed since then....She did say that when she did my adhesion removal she did not see a lot of scar tissue, which is good. She said I have less than normal.

Can anyone here tell me if they've had a bowel resection because of recurrent obstructions at the ileostomy point from j-pouch surgery?

Are you happy afterwards with less obstructions?  They tell me the benefits outweigh the risks, but you know I want to avoid surgery if possible.

Right now, I feel I've been partially obstructed for a few days because my belly is tight on right side especially after I eat.

Any advice, support is appreciated.  I'm afraid, but I think this might be a good surgery for me in the long run. I've had probably 5-8 ER visits over the years for obstructions.

Replies sorted oldest to newest

I have never had one but I only had my 2nd surgery December 12 of last year. So I can't help but I'll be praying for you. I hope it goes well for you. If it makes you feel better I was really scared before both of my surgeries. Getting a colon removed and having a j pouch made is pretty scary after all. Let me know how your bowel resection goes. I'm sorry I can't help answer your questions but I can be very supportive to you. 

EricaLeeJpoucher

Hello, Temoty.

Call the surgeon who is performing your resection and ask if you can talk with one or two of her patients who has had this procedure done. Surgeons and doctors sometimes have a list of their patients who are willing to be a peer patient and can give you support, information, tips on what to expect, and aftercare. Your own GP might have some patients who are willing to talk. Try not to worry until it is actually decided to resection. Good luck.

Winterberry

Temoty,

Although I was not subject to adhesions and obstructions for over 30 yrs, in the last 8 I started to get both. 

I had about dozen pouch redos and various hernia and obstruction surgeries between 2000 and 2015. 

The first obstructions were more like an ileus (when your bowel doesn't wake up post op or worse, 'falls back to sleep' so to speak after a few days...it can also be the sign of bowel swelling.

As time went by I found that I had some repeat sites where my bowel seemed to twist or block more often than others...in my case it was on the left, around where my original colostomy site was which was problematic when I was a kid.

As it got worse I finally consulted and found that I had adhesions sticking a loop of bowel to the inside of the abdominal wall. 

In the end, I had surgery to release it and other adhesions...It is still a problematic site, no longer causing full blown obstructions but partial ones. 

I do not know whether or not it will go back to being as bad as it was but for now, I am careful, chew like crazy, hydrate a lot and am careful of what I eat and the quantities.

I honestly believe that once something is broken it will never go back to bring perfect. It is not going to get any better but I hope that it doesn't get any worse.

Sharon

 

skn69

Add Reply

Copyright © 2019 The J-Pouch Group. All rights reserved.
×
×
×
×
Link copied to your clipboard.
×