Skip to main content

I've been dealing with a bloody discharge from both ends of my j-pouch.  Doctor thinks it's a bleeding ulcer in the pouch.  My surgery was complicated by having blood vessels that barely reached down to where the j-pouch needed to be located.  As a result there's a stricture and, in a corner above it, a bleeding ulcer.  Has anyone else dealt with this?  I'm not inclined to do the take-down unless and until this is resolved, but my surgeon is of the wait and see if it heals  and it's not healing. 

Any advice or healing stories would be great, thanks.

Tags: advice, ulcer, Pre-take

Replies sorted oldest to newest

Follow up - chatted with my GI doc and filled him in on the surgery.  Evidently this is a rare post-surgery problem, the inflammation/ulceration was probably caused by a combination of poor circulation and the chemo.   He took a deep breath and said we are now going to practice 'kitchen sink medicine'.  Since the J-pouch is not taken down it's almost impossible to get meds to the site of the inflammation.  So I'm taking vitamins to help me heal and spending quality time in a hyperbaric chamber, which seems to be reducing the inflammation.   In two months they'll scope the pouch and see if the ulceration has healed.  If that worked then another scope under anesthesia to stretch out the stricture, if it's even possible.  If that works and holds, then I'll have the take down surgery.  If the ulceration fails to heal, then I get to have the j-pouch removed and live with a permanent ostomy.  I'll post again as there is news. 

In the mean time, has anyone else had hyperbaric treatments?  How effective were they? 

LC

Add Reply

Copyright © 2019 The J-Pouch Group. All rights reserved.
×
×
×
×
Link copied to your clipboard.
×