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So, I have not been on the forums for almost a year exactly (maybe it's something about the month of February that makes my body freak out lol). I just had a couple of questions that I wanted to ask you fellow J-pouchers in regards to a few things I've been dealing with lately.

First and foremost is the nausea. I had my final surgery almost 3 years ago and every single day since then, I have experienced mild bouts of nausea. It is never enough that I think I am going to throw up. It's just sort of in the background and is almost annoying, to say the least. I think it's simply a side effect of when my body becomes slightly dehydrated but I just wanted to see if anyone else has this and what your experience with it is.

Next are the headaches. Almost a year ago, I started having these short headaches that I have found to be called "ice-pick headaches" because they are short, fast, and feel like someone has literally just taken an ice-pick to your skull. They hurt very badly and fade almost instantly but they always happen at the most random times. We thought for a while that I might not be getting enough sleep but there have been days that I've had 8 or more hours of sleep and still had them. They're not every day, they're not even every week. Sometimes I'll have 5 in one day, and sometimes I'll have one and then not have another for 2 weeks. I have no idea if these are related to dehydration or other pouch type issues but just thought I'd put it out there.

Lastly is the sleepiness. Now, I know that being tired is a big side effect of having UC and the pouch because it is very hard for my body to absorb the nutrient it needs to feel energized but I really would like to know what others do to feel more awake throughout the day, besides coffee or sugar. I sometimes even feel afraid to drive home form work because I'm so tired and don't want to fall asleep at the wheel. Does anyone have a solution to this?

Please and Thank you to any and all comments that can help me with these issues.

Alecz <#3

Tags: Headaches, Nausea, J-pouchers, Sleepiness

Replies sorted oldest to newest

Alec, 

What time of day do you usually get the nausea? Is it mornings? Evenings? Is there a specific time of day? Does it happen on a full or empty stomach? 

Same question with the headaches...any link to eating, empty stomach or time of month? Have you tried to chart it?  

I know a lot of people (women) who get nausea in the mornings on an empty stomach...could be hormonal and nothing to do with your pouch...ditto for the headaches.

Just a thought.

Sharon

skn69
skn69 posted:

Alec, 

What time of day do you usually get the nausea? Is it mornings? Evenings? Is there a specific time of day? Does it happen on a full or empty stomach? 

Same question with the headaches...any link to eating, empty stomach or time of month? Have you tried to chart it?  

I know a lot of people (women) who get nausea in the mornings on an empty stomach...could be hormonal and nothing to do with your pouch...ditto for the headaches.

Just a thought.

Sharon

Sharon,

I have not tried charting yet. The nausea is pretty much any time of day and can be triggered by almost anything. Like I said, it's almost a constant thing to where I don't even notice that it's there until someone mentions it or I think about it and then I realize "Oh yeah, I'm nauseous right now" because it's been going on for so long that I'm use to it. I was thinking about charting the headaches but I'm not sure exactly what to chart. Maybe I'll look for an app to chart it on because I'm afraid that putting it in a notebook will cause me to forget what I need to write down if I'm away from it, but I almost always have my phone with me.

Thank you for the comment,

Alecz

alecz222

Alec, you could reduce some of your uncertainty by attentively staying hydrated continuously for a couple of weeks. If you're peeing 3-4 times daily, and it's light-colored, then reassess your symptoms. If they've substantially improved then your hydration theory holds up. If there's no particular improvement then something else is going on.

My advice is to then continue hydrating adequately, whether it explained those particular symptoms or not. Do it as though your body matters. 

Scott F

Another thought Alec, 

How much time do you spend on a screen? 

Whether it be smartphone or computer, the constant ocular activity could cause both the nausea and the sudden headaches...

Just a thought.

I think that you can track a lot of your symptoms on a health app available on Samsung and Iphone.

Sharon

 

skn69

My yearly appointment with my doctor is coming up soon and I plan on discussing these issues with her. My job actually requires me to be on a computer a good bit of the time but I am going to try to find some ways to get my eyes off the screen and maybe do something else, if I can. That could be beneficial for not only my mentioned symptoms but also the fact that my back hurts alot due to my always sitting. 

alecz222

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