I'm new to this forum and I just got approved today. Well, I had my colon removed October 2016 with a temporary Ileostomy until my take down in December 2016. I had to get my colon removed due to having fap and a high chance of getting colon cancer one day. I had found this out because I had a colonoscopy and upper scope in August 2016. My colon had hundreds of pre-cancerous polyps. I also have polyps on my stomach and have a high chance of getting stomach cancer. I have to get an upper scope every six months because of this. When I found out I had to get these surgeries, I wanted to cry. I didn't want to get the surgery, but it's not like I had a choice in the matter. Everybody told me it would be okay, but they have no idea how not okay it is! They just don't understand it at all and some people try not to understand.
Post take down has been a hard time for me. Not just because of the pooping all the time and the butt burn. I was recently in so much pain from my chest to the upper part of my legs. I went to the er and they said I might have infection. They also said I have fluid in my abdomen. They gave me antibiotics, but it didn't help. My surgeon Dr. Hutchinson said it could be gas or the bowels slowing down. She said to eliminate soda from my diet and it helped a lot. Now I just have this pain in my butt and when I have this pain, I can feel my heart beat in my butt at the same time. Does anybody else ever get this kind of pain? Sometimes it makes it feel like poop is coming out, but when I check my underwear, there's no poop there. It also feels like something sharp is poking my butt and it hurts really bad. I also have to strain a lot when I poop and not much comes out. I'm constantly in the bathroom though. I take colestipol for pooping because lomotil didn't help me. My GI said not to take too much of it, though he didn't say why. I know colestipol is for lowering cholesterol, but it helps keep my poop somewhat formed. I think it might be making it hard to poop though. Has anybody else took it for the same reason as me? Just curious because I haven't read anywhere about anybody using colestipol. Well, hopefully things get better for me soon. I'm glad I found a place where I can talk to other J pouchers. Sorry my post was so long.