From what you know, what are the signs and symptoms of cuffitis? A lot of the symptoms seem to cross over between pouchitis and any other potential complication we face. However, certain symptoms are hallmarks of non-pouchitis complications, right? Though if we're having symptoms like increased frequency and inability to empty, pouchitis is likely involved, right?
I haven't had as much urgency this past year. In fact things have been pretty good. Lately though, there are times when I know I need to empty because I feel a burning in my rectal area. Not an urgency, just a burning. Is this a pouchitis thing or a cuffitis type thing or something else? Also, there are times when I am about to finish wiping and more stool comes out...diarrhea-ish. Lots of times, more stool will empty multiple wipes in a row. Very frustrating and painful. After that I'll often see blood on the tissue and my rectal area will feel like it has broken glass in it. Even the bidet hurts, but it still helps more than the TP.
I do self-dilate for a stricture at the rectal hook-up on a regular basis. I am on Cipro because my frequency was going up and the not being able to empty was happening more frequently. Wish I knew what was to blame.
This next thing may be normal, but I'd like to hear from others: sometimes I'll go and then again 20-30 minutes later. It usually happens in the morning. After that, I'll usually be done for at least a few hours. Weird, but thought I'd throw that in there.
