Skip to main content

Hey, everyone.

It's been a while since I've participated in a gut forum. I had my j-pouch surgeries in 2011. I cleaned my medical news alerts and said goodbye to UC then.

The content here has been good to read. I hope I can contribute a bit, too.

I'm from the US. I've lived in Japan for four years. Healthcare costs are a huge concern for me. Like a number of UC + j-pouch folks, I have mental health concerns and liver concerns with PSC. I can say that I live comfortably in Japan, while - at 28 - I can't afford close to the same quality of life in America. (I'm just an ESL teacher.)

My wife and I wish to have children and move to America at some time. Perhaps Australia if the insurance/healthcare situation hasn't improved.

Good j-pouch groups are in short supply. I'm happy to add my general or specific (Japan, abroad, chronic pouchitis / psc / mental) two cents.

Replies sorted oldest to newest

I am actually in a very similar situation. I was living abroad but had to go back since my ulcerative colitis was acting up, they found dysplasia, and it was decided that I needed surgery. I wanted to get surgery in my home country, so I went back.

I have now had my first surgery (out of 3), where they created an end ileostomy. Things are going well, but I feel that I probably want to go ahead with the rest of the surgeries soon.

I wanted to ask how long you waited after your final surgery before you felt good enough to head back to Japan? I probably want to live abroad again after all of this is done, but I am scared that I need to have access to my surgeon for quite a while after the last surgery, even if I feel good.

Also, have you ever had to seek medical help in Japan after you went back after your surgeries? If so, do you feel that they could "handle" you even though they didn't perform the actual surgeries?

K

Hey, 07KRO.

I had the surgeries a few months after I finished university - actually had the colectomy on my birthday. Takedown was a month later. In-patient recovery was about a week, but I was in the emergency room just a day later.

Complications from ileus kept me in the hospital for another month. Basically, my intestine forgot how to work and wasn't moving anything through. I'm not sure how common the problem is, just that there's a chance with major GI surgery.

Three weeks after that finished, I was back in the emergency room, fever of 107.6F. The infectious disease specialist said my intestine had a very small breach somewhere. The breach healed itself almost instantly, but some of my gut contents spilled into the rest of my body. Blood poisoning. The doctor wanted me to stay for a week, but I complained a lot and was a bit of an irritable ass from opiate withdrawal. They figured a way for me to leave after 48 hours, if I came back daily for some IV meds.

So, just that whole span of time was about 3 months. The whole time I needed increasingly more potent painkillers since my tolerance was going up. By the end, I couldn't even feel a difference after popping three dilauded/hydromorphone. Withdrawal took nearly two weeks of getting fevers, then freezing, muscle spasms, generally hating life (dysphoria), and being not-so-nice to everyone.

Either today or tomorrow is my 4-year Japanniversary. So, I needed about 2 years until I was near-ready.

The medical situation will, of course, depend on where you go. A big issue for me has been getting decent English support. It's quite easy in Tokyo, but pretty difficult in Osaka.

The gastros can handle my case. Quality of treatment is generally high, but also very different at times for legal or cultural differences. (For example, even immediately after surgery they will not prescribe anything stronger than ibuprofen.)

Gotta read up a lot before moving anywhere.

G

Add Reply

Copyright © 2019 The J-Pouch Group. All rights reserved.
×
×
×
×
Link copied to your clipboard.
×