Hi everyone. I have had my j pouch since 2012. My ulcerative colitis was so bad that the doctor who did my surgery said it was the worst case he'd ever seen in his 30+ years. I got my entire large intestine removed and the doctor told me I literally had a week to live if I didn't get the surgery when I did. Even though I am happy to be alive, the surgery was without a doubt the biggest mistake I've ever made.
I go to the bathroom close to 30 times a day, and that's on a good day. I am a professional magician so this effects my shows. I also can't keep a regular job because I'm in the bathroom so much. I have CONSTANT gas, my stomach doesn't stop making noises, I'm always feeling the urge to pass gas but can't. I haven't gotten a complete nights sleep since I got my illeostomy removed. I get maybe 3 hours at a time then I'm back in the bathroom. And having insomnia doesn't help either.
I don't eat junk. I eat healthy, I try to at least. I am a bit overweight, but every time I try to exercise, I can go for about 10 minutes or so at a time and then it's back to the bathroom.
What can I do? This had ruined my life. I have thought about reversing the j pouch but I don't have health insurance. Medicines like beano and gas x don't work on me. I literally need to take half a bottle in order to feel any effect. I've tried everything. I honestly want to end it all sometimes. Any suggestions on what to do?
