Hi folks - thanks for having me in the group.
I'm about 5 months post reversal and enjoying the fun of suspected pouchitis for the first time (am still waiting for a scope to confirm).
I've heard that exercise is good for pouchitis. but went for a mid-length walk on Saturday (say 2-3 miles) and it really aggravated the symptoms.
I had my ileostomy after 16 or 17 years of ulcerative colitis and I had a similar problem with the UC - even riding short distances on my bike would significantly aggravate a flare; there'd be markedly more blood in my stool.
That didn't seem to be a very common symptom of UC, and I can't find anything online that says it happens with pouchitis either.
The docs don't really recognise it as a thing when I talk with them about it - so I thought I'd post here to ask if anyone else has found that physical exertion (even mild exertion) can cause problems with a pouchitis flare?
If so, I'd be very grateful to hear from you!
Things are feeling a little lonely where I am right now and just to know that other folk are having similar difficulties (and possibly anything that helps?) would be really appreciated ...
Thanks all, tim
To add, I'm on antibiotics and am taking Loperamide to slow things down - if I have a couple of days of either driving everywhere or not leaving the house then things settle to about 6 quite solid stools a day - with some seepage overnight. However, after this walk, I had diarrhoea and small amounts of blood for a day or so. (It's also perhaps worth stating that my evidence isn't solely this walk - whenever I do more than walking just 200-300 metres, it impacts on my stool).
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