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I had emergency surgery two years ago to remove adhesions and since they were going to operate anyway, I asked for a permanent ostomy. The surgeon told me he wouldn't do that because I could end up with short bowel syndrome. But lots of people have had their pouches removed and been fine, right? Are there lots of cases of short bowel syndrome after pouch removal?

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I had my j pouch removed and a BCIR constructed.  Although a short segment of intestine was used to construct the new pouch, I have no signs of short bowel syndrome and now I watch my food intake to maintain a stable and healthy weight.  A significant percentage of people who opt for a BCIR or k pouch have converted from a failed j pouch and have had very positive results.  I would suggest that you get a second opinion on your condition.

BillV

I was somewhat concerned about this because during pouch formation, due to complications, I lost  much more than the usual amount of small bowel. I wanted to maintain the max amount of intestine, as we all should.  I had UC but this would be even more important with Crohns. When I asked the surgeon how he was going to do the disconnect /removal I would have lost more bowel, not just the pouch.  Don't assume they will just disconnect the bowel at the pouch and stick the disconnected end through the abdomen to create a stoma. It can be much easier to disconnect the bowel near where the stoma is being formed (how he intended to do the surgery) and then remove the pouch with a "tail" of small bowel also removed. I insisted and he agreed to not do it that way but to preserve as much of the small bowel as possible.  I have had no issues with short bowel syndrome. That plus a well-formed stoma that sticks out 3/4" or so above the skin has made life with an ileostomy very simple.

C

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