Scheduled for mucousectomy to repair partial prolapse of flap that developed in my 2.5 year old pouch. It prolapses when I go to bathroom, and I can never empty. Initially, it caused me to go again 1-2 times. Now it seems I often have clusters of 3-5 return visits after BM. Going well over 25 times a day. Surgeon found flap during scope and thinks mucousectomy will help. I understand inherent risks of incontinence due to this procedure, and so many other risks of surgery (nicking other organs, anesthesia, etc) but as he described surgery in our follow up, he laid out many other risks. We had talked about possible temporary ileo allowing pouch to heal after mucousectomy. Is this typical or frequent? He also said if he's not happy with repair and pouch advancement that it could end up being open surgery to allow better access. I get that but, also said possibility he would redo pouch if necessary, and if trouble connecting/ stretching it that far could result in permant ostomy. While I know he's a skilled surgeon, and operates on lots of patients with pouch problems, I am wondering if these possibilities (redo and permanent ostomy) are out of line with norm. He doesn't expect these and promised to do his best, but wouldn't give %, so I don't know if he's just covering the bases or are those real possibilities, even if rare? If others have had mucousectomy at CC or other, were you warned of these other possible outcomes/worst case scenarios. Maybe I'm over sensitive, but am bit alarmed. I will check to see if he does the BCIR, though he didn't mention. Don't know if you can go back and do BCIR after ostomy or does it need to be done at time of poych removal. I'm Just not sure I'm ready to proceed with this surgery, given the possible outcomes. Want a better QOL, but manage most days.
I greatly appreciate all on this site who help others navigate these very muddy waters! And encourage and support as well!
Thank you!
laurie. Ljz