Well, it's been almost 6 months since my surgery. Ended up, my new surgeon in chicago, who has recently come from CC, did a mucosectomy and pouch advancement, but did not feel full pouch redo was necessary. Mixed emotions on that. Obviously, really glad to not have had major 2 step surgery, but was looking forward to new and better pouch. No guarantees new pouch would be better anyway. But, surgeon felt my issues were with cuff and he was able to reconnect pouch successfully. About a week after surgery, prolapse returned, despite him thinking he had removed the flap that was protruding- so we now know its the actual pouch prolapsing. Dissappointing, to say least. Mostly things good after first month with changes in meds- no more Metamucil, Immodium but not Lomotil, and he wants output looser than before. Like before my surgery, I can hold liquid output quite long, but starting in last few weeksto experience more leakage of soft stool, especially at night, and prolapse more pronounced. Seem to be struggling with inflammation and gas, too. Also need to take Colestipol for acidy output, gas-x trying to control gas and trying to take daily probiotic. My new gastro said at November appt. that I could add Lomotil in addition to Immodium. May talk again with him about that as my last 2 weeks have been increasingly difficult. Having some family and other stress that I feel may be contributing, so trying to get handle on that too. For now just trying to make adjustments and no thoughts of further surgery (pouch redo) for awhile. Hope you're continuing to do well with your new pouch!
Laurie
