Diagnosed UC Feb ‘13
J Pouch Surgery June ‘13
Reversal Surgery Sept. ‘13
Hi I am a 27 year male & I was diagnosed this time last year with UC out of nowhere. I had not prior signs or symptoms until the beginning of 2013. I was having really loose & bloody BMs for about a month before I had a colonoscopy done at the end of Feb. ’13. The doctor said I had colitis. He put me on Asacol which made my symptoms worse. A week after my colonoscopy ended up in the emergency room because I was losing a lot of blood with high frequency of bloody BMs.
I entered the hospital on March 4th 2103 & came home the day before Easter. During my time in the hospital I was on Prednisone to try & bring down the inflammation. I had really bad stomach pains & went to the bathroom at least 20 times in 24 hours. The doctors would make me keep a log to track how frequent I was going & to measure the output each time. I ended up on TPN because I could not eat or drink anything since it would make my symptoms worse. I’m 6 feet & was 175lb before I went into the hospital & when I left I was 140lbs. My doctors decided to try me on Remicaid. I had my first dose & it went well I did not have any complications with the injection. I had to wait a week before I could get my second injection. The day before I was supposed to get second dose of Remicaid my tests came back saying my liver enzymes had tripled meaning that my liver was going to fail if the doctors decided to give me the second dose of Remicaid.
That was went the decision was made to have the surgery to have my colon removed. Once I had my colon removed I was pain free & it was a huge relief. Then I had to deal with the colostomy bag for about 6 months which was challenging at times with leakage. I had my second surgery to create the J pouch in June 2013. I was pretty sore after that surgery but it was one step closer to the end of the process. I had the reversal surgery in September 2013 & was bag free. The doctor told me I should be going to the bathroom 6-8 times a day at 3 months after the final surgery.
Here I am today 5 months after the final surgery still going to the bathroom at least 12-15 times a day. I am constantly going to the bathroom. I travel a lot in the car for work & always pulling over to find a bathroom. I had plenty of close calls with soiling myself. The past week I started a gluten free diet & have been taking Metamucil to help thicken my stool. Also I have been following a FOBMAP diet. Trying all of these things I have noticed that my stool is thinker. This helps a little with the control issue but the frequency is about the same. Does the frequency ever get better? Also I’m up to 156lbs & started going back to the gym & taking protein shakes to put some weight back on. Does anyone have any more suggestions of things I can try to get the frequency down? Also how to put on some weight?
J Pouch Surgery June ‘13
Reversal Surgery Sept. ‘13
Hi I am a 27 year male & I was diagnosed this time last year with UC out of nowhere. I had not prior signs or symptoms until the beginning of 2013. I was having really loose & bloody BMs for about a month before I had a colonoscopy done at the end of Feb. ’13. The doctor said I had colitis. He put me on Asacol which made my symptoms worse. A week after my colonoscopy ended up in the emergency room because I was losing a lot of blood with high frequency of bloody BMs.
I entered the hospital on March 4th 2103 & came home the day before Easter. During my time in the hospital I was on Prednisone to try & bring down the inflammation. I had really bad stomach pains & went to the bathroom at least 20 times in 24 hours. The doctors would make me keep a log to track how frequent I was going & to measure the output each time. I ended up on TPN because I could not eat or drink anything since it would make my symptoms worse. I’m 6 feet & was 175lb before I went into the hospital & when I left I was 140lbs. My doctors decided to try me on Remicaid. I had my first dose & it went well I did not have any complications with the injection. I had to wait a week before I could get my second injection. The day before I was supposed to get second dose of Remicaid my tests came back saying my liver enzymes had tripled meaning that my liver was going to fail if the doctors decided to give me the second dose of Remicaid.
That was went the decision was made to have the surgery to have my colon removed. Once I had my colon removed I was pain free & it was a huge relief. Then I had to deal with the colostomy bag for about 6 months which was challenging at times with leakage. I had my second surgery to create the J pouch in June 2013. I was pretty sore after that surgery but it was one step closer to the end of the process. I had the reversal surgery in September 2013 & was bag free. The doctor told me I should be going to the bathroom 6-8 times a day at 3 months after the final surgery.
Here I am today 5 months after the final surgery still going to the bathroom at least 12-15 times a day. I am constantly going to the bathroom. I travel a lot in the car for work & always pulling over to find a bathroom. I had plenty of close calls with soiling myself. The past week I started a gluten free diet & have been taking Metamucil to help thicken my stool. Also I have been following a FOBMAP diet. Trying all of these things I have noticed that my stool is thinker. This helps a little with the control issue but the frequency is about the same. Does the frequency ever get better? Also I’m up to 156lbs & started going back to the gym & taking protein shakes to put some weight back on. Does anyone have any more suggestions of things I can try to get the frequency down? Also how to put on some weight?
