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Hi all,

I've had a j pouch now for nearly 5 years now and have avoided any follow ups with my surgeon and GI up until this past week (not smart, I know). At my appointment with my surgeon this past week he did a pouchoscopy and determined that my anastomosis needs to be dilated (I am schedule for next Tuesday). I'm worried that this will do more harm than good as I've had minimal issues with my j pouch thus far (other than pouchitis every once in a while, but cipro always clears that up). 

Is it possible that getting my pouch dilated could cause me to have problems at night? I've had some issues in the past at nighttime depending on what I ate, how late I ate, etc, but it doesn't happen that often and I'm wondering if a dilation could somehow cause me to have more accidents or other problems.

I'm really not sure what to expect as I haven't had any procedures done in 5 years. He said I will be asleep for it, which is good, but that makes it sound like quite a big deal to me.

Thanks in advance for any input!

 

Tags: dilation, surgeon, issues

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My surgeon says that my anastomosis is too narrow and that dilating it could PREVENT nighttime accidents because maybe I'm not emptying 100% when I go. I don't think it's urgent or an emergency, but I did mention to him that I am due to lose my insurance next month. I am not sure how long I will be without it and he said that he absolutely thinks I should be dilated before then.  

I'm just worried there will be side effects that I am unaware of. I've tried reading up on it but have been having trouble finding information. 

N

Nettie, it sounds like the risks of treatment are less than the risks of leaving it alone. A careful dilation is pretty low-risk. While it's worth asking your doctor what they are, for awareness, for me it's a bit like not dwelling on getting hit by a car every time I cross the street. 

You shouldn't have to go uninsured. You can get insurance at healthcare.gov through the Affordable Care Act. You should be eligible for a special enrollment period, and you should be eligible for subsidies to keep it affordable. Pennsylvania participates in Medicaid expansion, so everyone can be insured in your state.

Scott F
Last edited by Scott F

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