my 11 + year old pouch is acting up and I could use some advice. I have chronic pouchitis which has been controlled for over 10 years with 500 mg Cipro once a day and the occasional stint of twice a day when it flares. I also get cuffitis about once or, at the most, twice a year. In the last 4 weeks, I started out with way more gas, then a bit more frequency. I have also leaked twice - something I have maybe done five times in 10 years. I doubled the Cipro after about a week and a half of that. Things didn't get better. Then the cuff began getting sore and frequency went up even more. I started Canassa suppositories and a general ointment a week ago. The cuff is feeling a lot better, but frequency is still up. Yesterday and today were state testing for my students and I was in a room for 4 hours without a break. I did call yesterday for one, but it is always a bit embarassing and I know it is a hassle for people to come to the room to watch my kids. Today I had to go and just decided to try to hold it. Big mistake. When I finally got to the bathroom, I had to run in and out 4 times in half an hour. On the way home, my rear end was spasming a lot. The whole pouch was spasming, not just the rectum or the cuff. That has calmed down, but I am still spasming a little and getting the message to go to the loo, but not a lot comes out.
Obviously, I need to not hold it in for that long, although when things are "normal," I can do that for hours sometimes. Does this sound like cuffitis? Any suggestions?