So for many months now I've been dealing with issues and have gone into the doctors on many occasions for assistance. Each time I have gone in I have been told to take lamodial for the chronic diarrhea and been given multiple types of creams for the skin breakdown, some medicine in enema form for fissures and ulcers in my anal canal. And still I have issues. I emailed my surgeon at the mayo clinic who took a week to reply and said only to get checked for pouchitis. I informed my doctors and they set up for urgent appointments that happen to take two to three weeks just to set up and then another two to three weeks to be seen.
Now for several months I have been able to feel every bit of gas and stool pass into my pouch, in the most painful manner I have ever experienced. I can not go to the bathroom without ending up in tears from the stool exiting the pouch. When I go from sitting to standing I have acid leaking and boy oh boy does it burn something fierce. I have fissures and ulcers that open every time I go to the bathroom. To top it all off I am missing so much work I am getting corrective action for missing even another minute. New job plus newly single mother, plus school, plus all the pouch issues equals a very drained and exhausted momma. If anyone has any advice at all please tell me I am more than happy to listen. Ps my first bout of pouchitis was before I even got to use my pouch.