Hi everyone,
I've been reading postings on j-pouch site for years but haven't posted myself. Thanks for sharing your experiences - they've been immensely helpful for me in coping with j-pouch living- the complications that arise and accompanying emotional distress (support for which I found nowhere else). I have felt less alone and more optimistic because of your words.
Now I come to you for advice/ ideas. To give a bit of history I had my colectomy/takedown in 2003, suffered complications initially (ileus), eventually felt more fully functional after about 6 months and was relatively healthy for about 7 years. Then I began having intermittent bouts of pouchitis, tried immunosuppresant drug which did not bode well and settled on taking antibiotics (Cipro) when there was a bad flare up. I try to hold off as long as possible and it's been over a year since I've taken antibiotics. Though there have been some rough spells they've mostly been alleviated with dietary adjustments, taking high doses of probiotics and better managing my anxiety. Sometimes it's hard to tell what the causes/correlations are...Lately my pouch has been pretty unpredictable - more urgency, gas, some incontinence, etc. I have a scope in a week to see the true state of my pouch and assess whether I need another round of antibiotics.
The end of February I'm set to fly to Mexico with my boyfriend but am worried about all the uncertainties of traveling (which I have done before but in the U.S. and Europe) . Mainly I'm worried about staying hydrated with clean drinking water, having access to toilets, worst case scenario getting bad pouchitis or a virus and ending up in the hospital. I don't often veer too far out of my comfort zone but I don't want to be restricted by fears of what may occur and not participate in the life adventures I wish to. When I had surgery I never thought of all the ways it could limit me - only free me - but it has countless times. Does anyone have any tips or advice about traveling in general or particularly in Central America? I will be bringing wet wipes, Calmoseptine and an extra roll of TP for starters..
Thanks for listening and any ideas you may have!
~Jane