hello peeps - I was just informed by my doc that we can try to use Ornidazole to address my lingering pouchitis. This was the first I had heard of it and at first I thought maybe it was the same as the Tinidazole that I have heard others mention, but a simple Wikipedia search suggests that while both are used to protozoan infections, that they are unique. I am wondering if anyone has any experience with either med?
thanks, dewey
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I don't know about Ornidazole, but I have been on Tinidazole. It still is my go-to for pouchitis. Dr. Shen prescribed it when I first saw him, he called it "super flagyl". Worked well for my pouchitis, and still does, although it does give me the "tingles".
tingles? as in hints of neuropathy?
does it have the same awful metallic taste as Flagyl?
thanks
Yes, same metallic taste. Perhaps hints of neuropathy, but it's more of an all-over tingly feeling - not peripheral. It goes away after I'm done with the 10-day dosing.
oh boy that does sound like super Flagyl. hmmm, my doc proposed the Ornidazole in response to my plaint that while Flagyl does the job, I deplore the concomitant horrid taste, lingering metallic flavoring, and nausea and appetite suppression. I didn't ask her if it would be the same, I guess to be clear I should ask her before I jump into the pool. thanks for the heads up on Tinidazole, I think I will reserve that for dire needs.
Shen has prescribed Tindazol for me in the past due to Flagyl giving me that nasty taste and bad nausea. It worked great with no side effects.
so poucho differently from N/A you didn't experience metallic taste?
hmm, I guess this is the usual different meds have potentially different effects for each of us.
thanks for the input.
update for anyone curious. apparently Ornidazole is not available in the United States, much to the surprise of my doctor. So she wrote script for 2000mg of Tinidazole in a blast form, ie 1000mg per day for 2 days. The good news for about 5 days everything calmed down, I wasn't having nightly accidents, I actually decreased my frequency around the edges, and while clearly I could sense the metallic taste almost immediately after taking the 1000mgs each day, it wasn't overbearing and by day 3 I had no lingering taste. the bad news by night 5 which was last night I managed to have accidents again. oh well, next step will be upon next dilation pouchoscopy to evaluate visually how things look and if necessary switch my primary meds of Humira/methotrexate for perhaps Stelara. that's in about a month so we shall see.
I cant take flagyl, the taste and ongoing nausea gets to be too much, Tindamax causes no issues for me.
Shen also put me on Tindamax. It was way better than flagyl for me!! I was on it for about 5 years with no side effects. I despise flagyl and all its yuckiness. Still no drinking alcohol but I never felt like drinking anyway when my insides were awry!!
