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I got my j pouch disconnected and a loop ileostomy formed about a month ago. Since then the stoma has retracted and got smaller and smaller and most of my stool still passes through the pouch. My surgeon said this will eventually close over so he is going to re do the stoma in about a month.

Has anyone had problems with a stoma retracting and closing over. Is it a common thing. Thanks 

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So, how are you doing with a basically fully functioning j-pouch? If you are OK, I don't see the point in revising the ileostomy in a month. Why not just have the take-down and be done with it? Seems like a potentially unnecessary surgery to redo it at this point. 

Retracting stomas are pretty common, but I don't know about them closing over.

Jan

Jan Dollar

By "removing the pouch" I hope you mean reversing the ileostomy, NOT removing your j-pouch!

However, if that is what you mean and you were disconnected due to your Crohn's (got that from your profile), then maybe a revision is what you do need. Your first post did not explain the reason for the diversion. If your end goal is to have the ileostomy permanently, then an end ileostomy is far better than the loop. You can have an end ileostomy and leave the j-pouch in place, but in the long run that may not work out. Can you try reconnecting again to see if it works this time?

Jan

P.S. I just read your older posts and it appears you have been dealing with leakage preatty much since take-down without any improvement or response to any treatment. After seeing that I think you probably need to have the j-pouch removed and go with an end ileostomy.

Jan Dollar
Last edited by Jan Dollar

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