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hi to all- ive had my jpiuch for 4 months now- My bms are are approx 8-12 per day but the big problem is at night where i have at least halk of the bms and where the stools coming out are causing an important burning type pain. can this be that the attachment of the jpiuch to the anus is too small and not leeting stools pass easier? Im eating no spicy foods however i am having my evening whisky and 2 glasses of white wine. does any one have any advice?

 

THANKS

 

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Without the colon, there can be too much bile which burns like battery acid. I was put on welchol to absorb excess bile and it both reduced the number of stools and stopped the burning yellow diarrhea. Also use calmoseptine to protect the skin, really helps. Lastly, I don't like getting up to go at night so I really limit what I eat after 4pm.  Hope this helps and you get some non surgical relief!

A

There are certainly situations that call for questra/questran/cholestyramine. It's a reasonable medication, but I'd suggest trying milder interventions first. Constant use of barrier cream (zinc oxide, Calmoseptine, Desiten, etc.) after every BM (to protect the skin from the next one) is enough for many/most J-pouchers. These won't heal the injury, but they'll prevent further damage and enable healing. If this doesn't work you can get more aggressive, either with a stiffer barrier (e.g. Ilex) or with cholestyramine.

Scott F

Hi, I too was suffering from butt burn.  But a nurse gave me good advice and since then I'm much better.  I use baby wipes every time I go to the bathroom.  I wipe until perfectly clean.  I never use toilet paper anymore because it's very irritating for the skin there.  I use wet toilettes every time.  And then I use ointment with 1% dibucaine and apply it.  It works very well since I've given up toilet paper!  Good luck

 

CS

Have used the cholesterol meds Jan suggested to slow things down in past and back in the day, we used "A and D ointment" on anus.  Also use baby wipes to this day every time - they are by the toilet in my house.  I agree with whoever said (and you never know when this will happen) - sometimes the bile acidity burns like a son of a b.  Have those wipes (you can get them in little carry packs to put in your wallet) with you.  In a pinch, I can remember being out with friends and getting an ice cube (discreetly) and going to RR at a restaurant and holding it there with toilet paper just to get some immediate relief.  Ahhh- brings back great memories.  We love Paris - have only been twice.  If you are going through all this - what a lovely place to be - despite awful attack a few weeks ago.  What a beautiful city.  Good luck!!  Be gone, butt burn!!

AW

I would try cutting out the alcohol if you can. This may be causing more bile to be released and taxing your system. I eat supper early as possible and try not to eat after. I use wipes, calmoseptine when needed but I also use good old A&D ointment to help wipe when I am sore. Just a little bit on the paper or wipe makes it easier to clean off and pamper the skin.

S

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