What happens after J pouch diversion?

Omg, now 4 months later I'm getting fat! Lol! 

I was diverted to a permanent ileostomy at the Mayo Clinic 3 months ago. It just failed me. I had no quality of life. I wasn't willing to waste another 5 years trying to get it to work. 

My surgeon did a pouchoscopy a month ago and it looks beautiful inside now. I didn't need any sedation so saw it all with her narrating all we saw. It looked like it should with no pouchitis, cuffitis, bleeding and wasn't inflamed/red. My local Stoma nurse asked if I  was going to have another take down and I  said no. I feel so much better and after 5 years of fighting with my j-pouch I am looking forward to living without it.

We are all at different stages of our lives, have different other health problems and have different pouch specific problems.  For me this was the best decision. I had a horrible time with my temp ileostomy and this permanent one is great.   I don't like needing to use it. My colon had to be removed and since my j-pouch failed this is the best option for me. 

Good luck with your decision!

I agree 100 percent! 

Since I have had my pouch removed all the problems I have had have stopped completely......what I did was the right thing.  I know that.  The Pouch is not worth it....  I have found if you are having all the problems.  I am not fond of the bag but I am also not  chained to a toilet anymore and my butt doesn't hurt anymore.  I should have done it sooner.  

Now... I need my weight back.   

See there is a life after the jpouch, it is not that bad, no butt burn, less medication ,almost back to normal, Not as many tiolet stops almost eay what you like.

Thank you all so much for all the input!! My  biggest problem right now is that I still feel connected to the toilet. I am constantly drinking b/c I feel dehydrated if I don't so there is always something in my bag. Now that I am out and about more, I am still looking for potties so I can empty the bag. I can't stand the weight of the bag pulling on my wafer! I am looking at bag support options and hope that solves this problem. 

Thanks again!!

Ostomy secrets.

I have a belt.  Doesn't support the whole thing but it helps the top from drooping.  I use Hollister products.  I can let it get about a third full then I have to mt.  But that usually happens fast right after I eat.  I know what you mean though.  But I have not had mine long and am not totally healed yet.  I think once I am healed the weight and feel of I  will not be a problem. 

Good luck. 

Richard. 

I spent a lot of nights sitting up trying to change my bag. I     sat up catching  the spewing output (crap) with toilet paper ,  so it could be flushed instead of going in the trash.  Paper towels can't be flushed and I  worry about landfills I've figured out the best times to change it, based on the transit time. I change in the morning before I  eat or as soon after I eat as possible.  There is another time in late evening that is usually good as well. As you probably found out when you first started using the wafer/bag system we can't always pick the time to change it as there's a leak and you have no choice.  It gets better,

MARSHMALLOWS! Eat two about ten minutes before you change your appliance, especially if you need to change during the day after you've eaten. Also, for ladies with droopy top half of bag - maternity pants. They cover your belly, keep the bag close, don't cut across the bag, and fit great. I also wear panties that fit above the top of the bag and hold the bag close.

Love my grannie panties, lol

As a male I would feel funny in GP`s...... Lol. 

I am already wearing the crazy expensive ostomy secrets underwear and still feel the bag hanging....grrrr. Don't know why I am having such issues with this. Will keep trying new things and looking  at the possible options. Thanks again everyone. I am glad you aren't' wearing grandmas Richard...hahaha

I understand Lori. I have fibromyalgia and when I  have to wear a belt hooked to my bag or pants that mess with my bag it drives me nuts. I have a hard time with the plastic bag against my skin too. I  bought some bag covers from someone on etsy.  There are several folks there that make them. The best one I have is made out of a light flannel material. They cost is approximately  $10. Lot cheaper than $25 for a pair of undies from Ostomy Secrets. 

I learned that those with fibro feel the same about restrictive clothing. Women all pull their bras off aso soon as they get home. When a normal person puts on a shirt they feel it briefly. When a fibromyalgia sufferer puts it on they feel it all the time. Hopefully you don't have to deal with that. I have a wardrobe of baggy sweats and sleepwear. 

I just got two pairs of men's underwear from OS... I can tell they will not help as you said it looks like it will not support the bag at all.  It's just a low pocket that goes along the whole front of the underwear.  I thought it may have a actual pocket on one side or the other to stuff the bag in.  Generic pockets I am gonna send em back for that price.  Besides my wife bought medium.  I am so skinny the smalls I wear are almost too big.  So I know... Even though my wife insists I try them... They won't fit and work.  I would be better off sewing a pocket into the Hanes underwear I buy from you he store.  �� mmm... Idea.