There are lots of possible causes, but Raynaud's Phenomenon is one sign of Ehlers-Danlos Syndrome. Perhaps it's as "simple" as that? Also, you might be anemic.

Thanks Scott,

Blood work I guess is the best start (and a visit to my GP).

Sharon

My first thought was Raynaud's too. It is quite common. But if you have a goiter, you really need to follow up on that, even though it was benign last time. Things can change over time. Definitely not normal. You don't use salt that is not iodized, do you?

http://www.thyroid.org/goiter/

 

Your meds should not affect your peripheral circulation. As you get older, various cardiopulmonary issues become more likely. If you are not dehydrated, you should have another look at your heart/lung status.

https://en.m.wikipedia.org/wiki/Cyanosis

 

Jan

Well, beta-blockers can cause Raynaud's, but Sharon didn't report taking beta-blockers. I agree that an enlarged thyroid ought to be evaluated by a doc.

Jan,

I've been using Pink Tebetan moutain salt (supposedly pure and better for you! Piffle, but it tastes nice)...I never thought about the iodization  really but I doubt that it is...good point. I have been using it for about 1yr+ , about the time that this lump started to appear (last winter)...it went away in the summer (when I am home in the U.S. with iodized salt?) and now it is back....hmmm

I can't think of any place else that I would get iodine...don't eat seafood...

Could it be that simple? Just change salt?

Sharon

No, no beta blockers...

Just the stuff that I mentioned.

Sharon

The thyroid really could be as simple as insufficient iodine in your diet. That's why iodized salt was invented. That you don't eat seafood is a huge clue. It's hard to know if the places you eat in the US use iodized salt, but if they're in the midwest there's a good chance that they do.

 

And this doesn't say anything about blue fingertips.

My first thought is Raynaud's as well, but it's good to go for a full work up in any case. You mentioned having cardiac testing, but that was 2 years ago and a lot can change in that period of time. It would be a good idea to repeat that. Other things to rule out - some of which have already been mentioned -- include thyroid issues, anemia, peripheral vascular disease (my uncle had this and unfortunately ignored it for too long, until it eventually led to amputation of his foot), or diabetes. Also, if you notice you have been bruising easily as well, you would need to rule out a blood disorder or (though I hate I mention it), leukemia.

 

Then again, it could definitely be a simple as not eating iodized salt. There are actually relatively few good dietary sources of iodine, so that is something to consider. If you don't eat seafood, then eggs and yogurt are fair sources.

 

Hope you get it sorted out!

Lack of iodine also ties in with the thyroid issue. I was recently on a low iodine diet as pert of my thyroid cancer treatment and I was not allowed eggs or dairy or seafood. Anything that comes from the sea has iodine in it and that would include careegenan and sea salt and seaweed. Eating even moderate amounts of dairy and eggs and seafood should do the job. Iodine deficiency is quite rare and is most frequently observed in those eating native foods diets in deep inland areas like the US Midwest and Canadian interior.

Nope, no eggs either (can't stand the taste or texture!)...but I do eat yoghurt...a little bit of hard cheese and fish.

I have lymphoma but have not had any 'problems' since diagnosised and both chains of inguinal lymph glands removed .

Hubby is on finger tip watch...I can be in the middle of something and they just change colour...purple to blue (really weird)...when I check the O2 saturation I am down to 93 or 94%...

So I guess I need to start making appts all over the place.

Just when I thought that things were going better there is always something new that pops up.

Sharon

O2 sats in the 90's should not cause any cyanosis, so I think that is a nonissue.

 

Jan