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I had a colostomy for almost a year and grew relatively comfortable with it (ate most of what I wanted, went to gym, gained weight). When I went in to surgery for my ileostomy, I consented to the j-pouch, but my doctor decided I had enough healthy colon above my rectum that I didn't need it. I had my ileostomy takedown a week ago, but the incontinence and butt burn are killing me! I tried to participate in thanksgiving with a small plate of diet-modified food, but I found myself on the toilet all day (before and after that meal). I'm constantly soiling myself and am only finding relief when I'm asleep. I realize my situation is unique since I don't have a j-pouch and I'm recently out of surgery, but any suggestions would be super appreciated (especially re: butt burn; it has made it difficult to sit and walk!). Hoping to regain some normalcy!

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I've already taken each bit of advice. I added immodium into my routine today and have been liberally using zinc oxide (and a sitz bath) which seems to be helping. I didn't know about pelvic floor exercises, but now that I do I'll start doing them every day. Thank you for your suggestions. Now I'll take that deep breath and hope it will pass!

C

 Part of the pelvic floor exercises is developing a good core. Perhaps you already have that. I didn't and it took months and months of core exercises to get back where I should have been. The advantage of pelvic floor PT is that they do biofeedback   But if you can do it on your own that is much better, in my opinion.   I can go in more detail if you wish 

 

Zinc oxide aggravated my butt problems. What worked for me was a brand called Critic Aid and it is a clear  Barrier  moisture ointment   But as we all know from this site, everybody is different and we certainly don't really know what's going on with the other, let alone ourselves sometimes.  there's a reason for the expression pain in the butt.

 Good luck, Janet 

J

Hello I use a cream called Gold bond it may burn a bit at first, but I find it helps to heel it faster, and believe me I have tried it all. Also I have started taking iron every day and that really helps. Metamucil works well, but you must keep taking it. One thing helps me more than anything is walking the dog, about 5 miles a day. I have a Border Collie so I can walk him as much as I like, and he will still look for more. Had my J pouch 1 and a half years now, and still finding out new ways to deal with it. Hope it all works out for you, and you have a Merry   

redl

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