Hi, I've been managing pouchitis pain for the last year with Tylenol 3, while trying to find a treatment that works, plus it helps with slowing down the bowels, which helps me sleep. But I find when I take more than one tablet every 4-6 hrs things start to I guess slow down too much causing more pain and a possible obstruction and also nausea. Can anyone suggest a pain med that helps with the pain and slows the bowels without causing any of these other side effects?
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If pouchitis is being effectively treated then it doesn't cause pain. Have you tried anything to treat the pouchitis itself?
Any bowel slower will get you in trouble if you overshoot the dose. They all work the same way, but vary in potency.
I honest prefer the pain to the side effects of the opiate based pain meds...I tried tramadol that they said would not have the same side effect but it slows my gut way too much.
I tried a non opiate that did nothing for the pain nor the the guts...
I agree with Scott...you need to see if you can treat the problem to get rid of the symptoms.
Sharon
Have you ever tried Bentyl (dicyclomine)? I have found that it really helps with stomach cramping and discomfort. It slows me down enough to get a good nights sleep, but doesn't completely stop me up. Also, I can take it during the day or at night because it doesn't make my feel "drugged" or tired.
Hi thanks for your replies, I am currently trying Entyvio, but not yet seeing any improvement and have tried many oral antibiotics and combinations, so I'm hoping the Entyvio kicks in soon. I haven't tried these other pain meds, but will mention it to my doctor and see what she says.
I do remember taking prednisone and the pain did subside, but the side effects of the prednisone...OMG...so very hesitant to go back to that....I think I'd rather manage the pain with T3 for now. 
Originally Posted by Scott F:
If pouchitis is being effectively treated then it doesn't cause pain. Have you tried anything to treat the pouchitis itself?
Any bowel slower will get you in trouble if you overshoot the dose. They all work the same way, but vary in potency.