Has anyone with FAP gone to MD Anderson? I got accepted at MD Anderson and have an appointment scheduled. It was quite a process getting accepted. I have run into roadblocks with doctors not knowing much about FAP. A friend of mine's husband who is a doctor told me I need to go to either Mayo Clinic or MD Anderson.
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I don't know where you are but Duke University Hospital in Durham NC has great FAP doctors too.
I goto Mayo Clinic here in Jacksonville Florida...........and would highly recommend them. I also know of a few friends who have FAP that have gone to MD Anderson......
I had my first appointment at MD Anderson with Dr. Lynch last Wednesday. I now have an appointment with a sarcoma oncologist.
I hope you caught it early and get great care. Write to us and keep us posted if you feel it will help you. Praying for good news for you.
