Was up 8 times Sunday night and 4 last night

I would suggest that you change up your eating pattern. Some people say don't eat at night, but for me, not eating just makes my gut churn and complain with gas. The only time late eating interferes with my sleep is when I eat pizza late at night. I get up once or twice otherwise. Sometimes I sleep through.

 

Plus, you may be slowing your gut too much during the day, so it gets saved up for the night. I really don't know when you are taking your bowel slowers, so I am presuming...

 

Jan

Always take ticure of opium in morning at 5 & 10 am then lomitol afternoon and before bed

I almost always sleep through the night, but I think if I took that many bowel slowers during the day the only time I *could* empty my pouch is at nighttime. I think that Tincture of Opium is just saving things up for later.

scott been weeding myself off that was taking 4 a day down to 1  a day not sure if i can just stop taking now 

UjohnC-

Stopping long-term opiates suddenly can be ugly. It won't kill you but it sure won't feel good. Have you ever tried the same dose of Tincture of Opium at bedtime, instead of in the morning? It might be worth the experiment. I think of Tincture of Opium as the last resort of bowel slowers. It sometimes helps when nothing else will, but 9 months in seems a bit early to have tried everything else. Do you have a diagnosis, like pouchitis or cuffitis?

 

I only take bowel slowers at bedtime, since (unless I'm getting on a boat) that's the only time I really want to slow things down much. I haven't struggled with some of the very high frequencies people report, though that seems to result more from a significant response to a small amount of stuff in the pouch (e.g. with pouchitis) than to things moving too quickly through the gut. Remember that no matter how much you slow the gut all the stool will get to the pouch eventually. If you're running to the bathroom frequently with little result it's important to find out what's making you run.

Scott I'm going to try taking tic at bedtime don't think I have pochitis or anything been on tic pretty much since takedown want to go off it down to one tine a day hard to experiment with things with work try to keep sane schedule work can get stressful at times and may not be able to get away for bathroom rt away hope to take week off soon to try things thanks jj

Why don't you think you have pouchitis? Frequent, urgent, minimally productive bathroom trips is a heck of a hint. For that matter, why were you put on Tincture of Opium right away?

Scott was going to bathroom 20+ a day when first had takedown that's why I was put on it guess I could have pouchitis I do smoke I heard before that could cause pouchitis tried quiting few times guess I prob should

I won't discourage you from quitting smoking, but (just based on the symptoms) a course of Cipro might possibly fix you up pretty quick.

Scott if it were pouchitis wouldn't I be in pain and have blood in stool?

Not likely. Blood is not typical of most pouchitis, and pain is more crampy than anything else, at least for me.