I don't have any responses, although I'm sure it will passes! I wish you to be well soon..

Thanks ikh x

I don't have personal experince with this and there have only been a few members here with PG that I recall. Hopefully, this will resolve with closure of your ileostomy (fingers crossed!). In the meantime, here is a link to some detailed information about peristomal pyoderma gangrenosum.

http://gastro.oxfordjournals.org/content/1/1/1.full

 

Hope it is helpful.

 

Jan

Thanks so much for your replys I really appreciate it, my nurse just called me and said 'you shouldn't have pyoderma now because the entire diseased rectum had been removed' so I asked do they think it could be chrons and she said 'the histology on your large bowel showed uc so we're baffled'

As far as I can tell I've never had blood in the ileostomy bag but I've always had bleeding from the rectum (the bleeding has been there from the 1st step when part of the diseased colon and rectum was still inside, so docs said that can be expected, and about 4 weeks after the pouch was created the bleeding started again and I've still got that bleeding now, the pouchoscopy showed inflammation in the pouch and they just wrote on the report 'querying diversion colitis' my reversal is scheduled for the 22nd of this month)

Can this bleeding happen like this, and can I still have uc? Or does this seem like chrons?

And the diversion colitis what is this? Or is it really Chrons??

I'm terrified, absolutely terrified

I don't think that colectomy is considerd a cure for PG. IBD is in your DNA. Plus, PG has unclear etiologies and disease course, according to the article I cited above.

 

Diversion pouchitis is caused by having a diverting stoma. It is more common than you'd think. There are a number of active threads here discussing it.

 

Jan

Thanks jan in a way it's good to know that the colectomy isn't a cure for pg at least I can hang on to hope that it can still be uc and not chrons, and thanx so much for the link!

I've read some on the diversion colitis, really helped I've said it before and I'll say it again this life is a godsend! Xxxx

Thanks again! Xxx