What is the healing like after polypectomy in the IPAA? Can patient sit? What about seepage? Burning? Need for pads? How soon can patient tolerate commercial air travel? ..... Seeking dialog with other patients contending with FAP + intra-abdominal desmoid tumor issues. Desmoid tumors (non-cancerous masses) occur in apx. 10% of FAP patients. My family member has a 20-month old J-Pouch and is age 23. Polyps have already developed near the Ileal Pouch-Anal Anastomosis (IPAA). Polypectomy is scheduled for Oct. 2015 at Cleveland Clinic. The desmoid tumors have not responded well to chemotherapy Vinblastine - Methotrexate. Our collective "miracle cure" would be gene-replacement therapy. KEEP PRAYING!! Until that time, we hope to share tips, resources and info. May the Force Be with YOU!
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I had numerous polypectomies when I had a j pouch and experienced no problems afterwards. You will be able to sit comfortably, experience no burning, probably not need a pad and will be able to fly after the procedure is completed. In my case, I had a cancerous polyp in the anal canal removed and no metastasis was found. Five years later, high grade dysplasia was found in the same area and the anal sphincter muscle was found to be very weak. Removal of the pouch was recommended, but I did not want an ileostomy with its issues. I had a BCIR instead.
When I had my third surgery to create the j pouch, some desmoid tumors were found, but no complications have occurred in 34 years.
You will need to have frequent scopings of your pouch to catch any problems early. The doctors at Cleveland Clinic should be able to advise you on both of your issues and advise you on follow up care.
Hi Bill,
Your experience and comments are quite encouraging. Our 23 year-old family member will be undergoing the polypectomy (half of the anal mucosa area) on Wed.... the other half to be done in 6 months. Thank-you so much for your timely response. I'll let you know how it goes. Best wishes from Long Island, NY