Skip to main content

This is my first time to have heavy pouch bleeding and I'm scared.   I woke up with bleeding last Friday and called my Dr.  He did a scope that morning and found an ulcer in the pouch.  He cauterized it and put me on flagyll, cipro and cort enemas.  It bled most of the weekend and I went the ER Sunday night.  They admitted me and he did a lower and upper scope and still just found the ulcer.  I was released Monday and today Tuesday I am bleeding heavy.  Saw Dr and he is doing bloodwork and going in to recauterize. AGAIN in the morning.  Has anyone lost  their pouch from ulcers?  I have been very stressed out lately and now I am so worried I can not eat or sleep.  Any advice is welcome!

 

Hoping

Replies sorted oldest to newest

Sometimes it's hard to get a bleeding vessel to stop bleeding. You'll probably be fine in the morning. Are you on anything that might slow blood clotting? Aspirin? NSAIDs? Fish oil?

 

If this is just pouchitis (in an inconvenient spot), you might want to start a probiotic (like VSL #3) when this is behind you, to reduce the risk of recurrence

Scott F

I have experienced bleeding in the pass,but never to the point that I thought that I needed to go to the ER.. To save you from a long story, in the end it was always altering what I was eating. I personally stick to what works,I don't change my eating routine very often.

Example : I eat a gala apples 1x a day, organic, I bought some non organic apples for what ever reason, and started bleeding . it was a few days to figure out what I was doing different , and it dawned on my maybe the apples, I switch back, and Ithe bleeding stopped.

I hope this helps 

Patrick

Patrick S

Thanks everyone.  The scope on Tuesday showed the ulcer was on a blood vessel.  You were correct!!  The Dr. recauterized again SO hopefully this will do it.   NOW he wants to test for Chrohn's even though I have been told UC all these years.  Has this happened to anyone else?  what happens if it is Chrohns?   I have taken a few weeks off work to try and recover.  All input and advice is appreciated! 

H

I'm glad you were able to get the bleeding dealt with.

 

A fair number of folks who'd always been told they had UC have been surprised by a possible (and sometimes even actual) Crohn's diagnosis. The tests to distinguish them aren't very reliable. In any case, even if it's definitely Crohn's, or maybe Crohn's, Crohn's can run the gamut from no problem to a big deal - not all cases are troublesome. There are a variety of good medications for Crohn's in 2015, and not everyone with Crohn's needs them.

 

And maybe you just had pouchitis with a badly placed ulcer.

Scott F
Last edited by Scott F

I wouldn't make the test, just I'd do if antibiotics and cauterization wouldn't work; and ask a second opinion if it doubts for crohns, at present doctors (which I don't consider good doctors) are very "easy" to mark with the word "CROHN'S" every pouch related problem. In many cases is just pouchitis, and I am sure yours it. Be informed, find posts on google using this search: site:j-pouch.org and find the descriptive studies of pouchitis you will find that pouchitis comes in a moltitude of different flavours and still remain pouchitis, in extreme cases, crohn's-like pouchitis.

To be considered crohn's you should have 2 of the following endoscopic symptoms: granuloma, AND outside the pouchitis inflammation (as you don't have neither fistula nor strictures). Otherwise, it's pouchitis.

I
Last edited by Ikh

Add Reply

Copyright © 2019 The J-Pouch Group. All rights reserved.
×
×
×
×
Link copied to your clipboard.
×