Hi Guys,
I haven't logged on in a loooong time. I came back to sign in and the page was different--that's how long it's been! So anyway I get pouchitis 2-4 times a year since 2011 and my quality of life has just slowly deteriorated. In 2012 I developed a horrible pain on my lower right quadrant--I explained the type of pain and my doctor said it sounded like a bad adhesion. I have scar tissue from polycystic ovaries as well and their theory is that I'm stuck together. I'm not totally blameless for the lack of recovery, I always bailed on physical therapy and I didn't eat well or exercise enough. But now, I'm still stuck in survival mode. I feel as if I stopped growing or maturing after my surgery. It's been over six years since my first surgery, five since I was fully connected, and I've been in survival mode the whole time. I haven't been able to keep a job for more than eight months since 2010 because I'm nauseated and in pain everyday.
It took three years of complaining and tests to confirm I don't have Crohn's or a fistula for the doctor to bring up lysis of adhesions. Initially they said they didn't like to do it because it can cause more scar tissue. I did not have the laproscopic colectomy, I was cut open, and the surgeon said there might be so much scar tissue that he'd have to open me up, and in that case that might cause scar tissue. So I'm really torn. The surgeon said 90% of his patients feel better, 5% about the same and 5% can make it worse. I'm back in physical therapy and want to get my life back. Five years of sitting down and lying down and all over inactivity has made me very weak. I just want to be done with college and move on like a real adult, but I can barely make it around campus (huge urban campus with scratchy toilet paper). I'm 27 now but I'm still 22 in my head. I'm surviving, I'm not living. Any experience or words of wisdom? I appreciate it. Thanks